Programme

The UKCRF Network was formally established in 2008, with funding provided from the Department of Health (DH), and the Chief Scientist Office (CSO) in Scotland. The development of this Network has given members a wider and emerging sense of professional community, facilitated collaboration across centres and supported existing experimental medicine facilities while accelerating the development of new sites.

This 9th Annual UKCRF Network Conference provides a platform for sharing of information across CRFs, for development of best practice and a structured opportunity to develop personal networks. The conference programme for 2013 has been developed jointly by the Birmingham NIHR / Wellcome Trust CRF and the Strategic Management Team with a focus on demonstrating the breadth of experimental research being carried out in Clinical Research Facilities across the UK & Ireland. For the first time this year there will be with many speakers from different CRFs nationally showcasing their research.

Delegate numbers attending the conference have increased year on year, with 2012 attracting over 270 delegates. Attendees include research nurses, trial co-ordinators, operational and business managers, laboratory staff, IT staff and clinical researchers / Principal Investigators.

Programme

The programme has yet to be finalised but will include:

Day 1 – Invited Speakers
Dame Julie Moore – CEO University Hospitals Birmingham NHS Foundation Trust
Professor Sir Keith Porter – Director of the NIHR Trauma Research Centre
Professor Janet Lord - Director of the MRC-ARUK Centre for Musculoskeletal Ageing Research and the Medawar Centre for Healthy Ageing Research
Professor Paul Stewart – Dean of Medicine and Deputy Head of College of Medical and Dental Sciences, University of Birmingham

Day 2 – Invited Speakers
Dr Louise Wood – Head of NHS Research Infrastructure and Industry R&D Relations, Department of Health
Mr Simon Denegri – Chair of INVOLVE & NIHR lead on PPI / PPE
Professor Andrew Morris – Chief Scientist at the Scottish Government Health Department and Dean of Medicine, Ninewells Hospital & Medical School, Dundee

Thursday 11th July, Day 1

Thursday 17th May
 08.30 Registration & Refreshments 
 08.30 SMT Meeting
Helen Pidd, UKCRFN and NIHR/WTCRF, Manchester
 09.30 Business meetings / Parallel Networking Session/ Tours of Unit / HRB / Atrium

Directors’ Meeting 
Chair - Dr Una Martin, Programme Director, NIHR /WTCRF Birmingham

Various business meetings
To be confirmed with chairs of each group
 11.00 Plenary Session 1
Developing an integrated research infrastructure
  Opening remarks 
Dame Julie Moore, CEO, University Hospitals Birmingham NHS Foundation Trust 
 11.10 NIHR Trauma Research Centre
Professor Sir Keith Porter, Director of the NIHR Trauma Research Centre, Birmingham 
 11.40 Old Age Should be Enjoyed, not Endured
Professor Janet Lord, Director of the MRC-ARUK Centre for Musculoskeletal Ageing Research and the Medawar Centre for Healthy Ageing Research 
 12.10 Academic Health Science Networks
Professor Paul Stewart, Dean of Medicine and Deputy Head of College of Medical and Dental Sciences. University of Birmingham
 12.40 Lunch and poster viewing
 13.30 Parallel Sessions

Parallel session 1A - Educating the next generation of researchers

Funding Academic Research Programmes - Dr John Williams, Head of Clinical Activities, Neuroscience & Mental Health, Wellcome Trust

Developing Clinical Leadership for Research Delivery - Dr Susan Hamer, Organisational and Workforce Development Director, NIHR

Delivering Academic Training Programmes - Professor Lorraine Harper, Education Director, Birmingham NIHR/WTCRF

 

Parallel session 1B - Novel Therapies 

Developing the Infrastructure Required to Deliver Advanced Therapies - Dr Philip Newsome - Clinical Director of the Birmingham University Stem Cell Centre, University of Birmingham

The Role of Advanced Nurse Practitioners to Support Immunotherapy Research - Michelle Davies, Christie NIHR CRF

 

Parallel session 1C

Developing new methods for screening low risk women for adverse pregnancy outcome - Professor Gordon Smith, Professor & Head of Dept Obstetrics & Gynaecology University of Cambridge

Challenges facing childhood Cancer trials; from new drug development to practice changing trials - Dr Pamela Kearns, Senior Lecturer in Paediatric Oncology and Honorary Consultant Paediatric Oncologist at the Birmingham Children’s Hospital.

Parallel session 1D

Building a Quality Infrastructure Platform for Future Research - Dr Jane Steele, Director, Human Biomaterials Resource Centre, University of Birmingham

Sharon Wood, Director of Safety Services, Universal Safety Consultants Ltd

 14.40 Parallel Sessions continued

Parallel session 2A - Perspectives from CRFs Nationally 

The Lothian Birth cohorts of 1921 and 1936 -  Dr Simon Cox, Edinburgh WTCRF

Tiny Babies, Big Impact -  Dr Charlie Orton, Alderhey NIHR CRF


Parallel session 2B

Premature coronary disease and accelerated atherosclerosis in SLE - Professor Ian Bruce, Manchester NIHR/WTCRF

Translational Research Partnerships in Chronic Disease Cohorts - Professor Chris Buckley, Arthritis Research Campaign Chair Of Rheumatology, University of Birmingham

Parallel session 2C

Opportunities for synergy with the Experimental cancer Medicines Network - Dr Jonathan Bull

Parallel session 2D

Clinical Interface Between a BRU and a CRF in Birmingham -Professor David Adams, Director NIHR BRU in Liver Disease, Birmingham

Paediatric Research Cohorts - Professor Deidre Kelly, Consultant Hepatologist, Birmingham Children's Hospital

 15.40 Refreshments and poster viewing
 16.00 Workshop 1
Education / Paediatric Research
Paediatric Emergency Scenario Training
Sharon McDermot, Chair of Education workstream 
Workshop 2
PPI Workshop
Martin Lodemore, Imperial College London and Pippa Bayfield, Cambridge NIHR/WTCRF
Workshop 3
Imaging Workshop
Follow up from last year and recent survey
Jason McMorrow, Chair of Imaging Workstream
Workshop 4 
CRFManager® User Group Meeting
Erika Bullen, Edinburgh WTCRF
Workshop 5 - Invitees only
NIHR CRF Directors and Managers
Dr Mags Sara and Dr Sonja Tesanovic
17.00 Close
19.00 Birmingham Town Hall for Indian Banquet

Friday 12th July, Day 2

Thursday 17th May
 08.30 Registration, refreshments and poster viewing 
 09.15 Parallel Sessions

Parallel session 3A

Clinical trials of enzyme replacement therapy in lysosomal storage disorders – an 'eventful history' - Dr C Breen, Manchester NIHR / WTCRF

A randomised controlled phase I trial of the Novel SIRT1 Activator SRT2104 in Healthy Elderly Volunteers - Dr Vincenzo Libri, Imperial College NIHR/WTCRF

 

Parallel session 3B

Cortisol and the control of metabolic phenotype - Dr Jeremy Tomlinson - running research programmes through a Clinical Research Facility

Metabolic research in transition from childhood to adulthood -Professor Tim Barrett, NIHR / WTCRF Birmingham Children's 

 

Parallel session 3C

Infrastructure for paediatric research - Professor Michael Beresford, MCRN

Dr Una Martin - Athena SWAN

Plenary session 2
Electronic Capture of research data


Development of PICS - Dr Jamie Coleman (to be confirmed)

CRFManager® Overview - Dickon Jackson, Edinburgh WTCRF

Research informatics - Debbie Berrill / Ellen Ward-Lindley, Birmingham NIHR/WTCRF
 10.15 Refreshments and poster viewing
All entrants to be present for poster viewing
 11.00

Plenary session 2 

 11.05 Public and Patient Involvement in research
Mr Simon Denegri, Chair of INVOLVE & NIHR lead on PPI / PPE
Public And Patient Involvement in research
 11.45  NIHR - What's new?
Dr Louise Wood, Head of NHS Research Infrastructure and Industry R&D Relations, Department of Health NIHR
 12.15  Gearing an entire country for Informatics and and Big Data Research
Professor Andrew Morris, Chief Scientist at the Scottish Government Health Department and Dean of Medicine, Ninewells Hospital & Medical School, Dundee
 12.45 Lunch and poster viewing
 13.45 Workshop 6
Costing and Sustainability
Dr Stephen Barnet, Great Ormond Street CRF 
Workshop 7 
PPI workshop
Martin Lodemore, Imperial College London and Pippa Bayfield, Cambridge NIHR/WTCRF
Workshop 8 
CRFManager® Beginners Training
Elizabeth McDowell, Edinburgh WTCRF
 13.45 - 15.45 Workshop 9
Double Paediatric session
Dr Saul Faust, Southampton NIHR /WTCRF
  Workshop 10 
Poster presentations (to be confirmed)
 14.50 Workshop 11
Clinical Support Services Pharmacy workstream - Inaugural session (to be confirmed)
Anthea Mould / Amisha Desai
Workshop 12
Patient experience of being involved in research (to be confirmed)
Workshop 13 
CRFManager® Advanced Training  
Erika Bullen, Edinburgh WTCRF
Workshop 14 
Emergency Scenarios 
Kornelia Hathaway , Cambridge NIHR/WTCRF
 15.45 Closing remarks and Prize Giving
 16.15 Close

Programme subject to change 

Photography

There will be a photographer on site during the conference and at the evening reception and photographs may be used for promotional purposes both for the UKCRF Network, the Birmingham NIHR / Wellcome Trust Research Facility and for the University of Birmingham. By completing registration, delegates consent to the taking of photographs.