As part of UK government’s welfare reforms (Welfare Reform Act 2012), from April 2013, Personal Independence Payment (PIP) has begun to replace Disability Living Allowance (DLA) for people aged 16 to 64. Over the coming few years there will be a staggered introduction of PIP (and it will eventual completely replace the DLA).
We wish to understand the impact of the specific DLA to PIP policy change, both in terms of the experience of claiming PIP (including the assessment procedure) and any changes in relation to the benefit received (in relation to both care/daily living and mobility components) and how it is used e.g. access to goods and services.
This year long project funded by RNIB, the Thomas Pocklington Trust, and Sense explores the experiences of the policy change for people who have a visual impairment or a dual sensory impairment (deafblind). We are interested in understanding:
Changes in the assessment procedure
Changes in the award levels
The uses and importance of benefits relating to disability
The impact of these changes on wellbeing
Knowledge of benefits generally, and PIP specifically
The project has two phases. In phase one, through the use of questionnaires we will focus on the experiences of:
16 - 25 year olds who have a visual impairment
deafblind adults with Usher syndrome
Appointees (usually parents/carers) applying for DLA/PIP on behalf of a young person
16 year olds who have a visual impairment or dual sensory loss (and may or may not have additional disabilities)
In phase two of the project, using in-depth qualitative interviews, we shall draw out the experiences from a number of participants in the first phase of the project to provide detailed case studies on the experiences of PIP for people with a sensory loss.
Dr Graeme Douglas
Dr Harriet Clarke
Dr Liz Ellis
Take part in our research
If you are interested in taking part in our research please view the information on our surveys for people with a visual impairment or a dual sensory impairment