Patient and public involvement

Professor David Adams, Unit Director  "One of our key aims is to increase the interaction between patient groups and researchers - their input is invaluable"

'Liver FOCUS' newsletter: Research, clinial trials, public engagement activities and real life stories

If you have any questions about Liver FOCUS or would like to suggest an article, please email liverresearch@contacts.bham.ac.uk, or telephone 0121 414 4955.

Our grateful thanks go to the Liver Patient and Public Involvement Panel for their valuable contribution to Liver FOCUS, for their involvement in public engagement activities and for their dedication to assisting with clinical trial patient information sheets.  If you would like to get involved or find out more, please complete the form at the bottom of this page.

Events Coming Soon...

20th May 2013 - Queen Elizabeth Hospital Showcase Day
This annual event allows visitors of all ages to participate in a range of hand-on science based activities whilst finding out about the groundbreaking research work being undertaken at the QEH and the University of Birmingham. The NIHR Birmingham Liver BRU and Centre for Liver Research will of course be present and we look forward to welcoming you to our stands! More information will be coming soon. This is FREE event. No registration is necessary and stands are open 10am-3pm.

9th June 2013 - University of Birmingham Community Day
A super day out for everyone and a great way to entertain and educate children! See our section below on 'recent public engagement events' to find out about the 2012 community day and what you can expect. The NIHR Birmingham Liver BRU and Centre for Liver Research have lots of experiments for you to get involved in!

This is a FREE day out for all the family. No registration is necessary and activities are open 10am-4pm.

Recent Public Engagement Events (2012)...

''Meet the Liver Scientist' at Birmingham's Thinktank, 22nd October 2012
"Crazy Experiments and Gooey Madness: Science is FUN!"
That was the message scientists and nurses from the NIHR Birmingham Liver BRU and Centre for Liver Research were passing on at Birmingham’s Thinktank museum. The team are passionate about showing that science is fun and their enthusiasm was very infectious. Hundreds of children had the opportunity to dress up like a scientist and take part in real experiments. They learnt how the liver works and why we need it, felt a mock scarred (cirrhotic) liver, participated in games, made badges and asked questions to doctors, nurses or scientists. 

Adults took part in games that highlighted the hidden calories in drinks from coffee shops – even the so-called ‘low fat’ options! They also had the opportunity to show how well they know their alcohol by measuring a unit of wine, beer and spirits. Unsurprisingly, most over-estimated a unit and poured twice the actual amount!Think-Tank-Body-TunicThink Tank event
L-R: Nurse Sharon Wyatt showing children where body organs live, and Dr Janine Youster, Scientist, undertaking REAL experiments with a willing volunteer!

 

 

Seminar on Current Liver Research and Trials, 20th September 2012
The National Institute for Health Research (NIHR) are the research side of the NHS, it funds many initiatives throughout the UK and is driving research from bench to bedside for the benefit of patients.The NIHR Birmingham Liver Biomedical Research Unit hosted a free seminar on the 20th September 2012 focussing on some current studies funded by the NIHR. If you missed this seminar and would us to host another, then please let us know. You can still view a summary of the talks* in a PDF document. Academics (researchers), clinicians (medical doctors) and members of the public attended and talks were suitable for all levels of knowledge. The presentations on current clinical trials were fascinating and a great deal of questions and interest were raised by members of the public who were present.   

University of Birmingham’s FREE Community Day, 10th June 2012

Community DayEach year the University welcomes everyone from the local community to visit our campus and find out what we do, as well as take part in some fun activities. Outside there were bungee robes, a myriad of giant inflatables, mini golf course, helter skelter, rock climbing wall and fairground stands.

Inside the Aston Webb Great Hall, our liver stand had lots of hands-on, gooey and interesting science activities to fascinate, captivate and stimulate brains of all ages, and which showed the diverse range of liver research undertaken at the University. T here were also informal discussion sessions on ethics and the role of stem cells, presented by Prof Jon Frampton and Dr Phil Newsome. The next free Community Day is on the 9th June 2013

Research Open Day at the Queen Elizabeth Hospital, 9th March 2012
The NIHR Birmingham Liver BRU and Centre for Liver Research once again took part in this popular annual event.  Many visitors came and tried our 'guess the units' game and learnt just how many calories there are in alcohol! Visitors also learnt more about our research.

Big BangEvent at the NEC, Birmingham, 17th March 2012

Big BangThis event was aimed at children aged 5-18 years to show how exciting science and engineering can be. 29,000 children attended, many of whom were fuelled up on the free sweets being handed out. Our activities included an ‘I’m A Celebrity’ style box where children could blindly feel a normal liver compared to a cirrhotic liver (actually jelly filled with popcorn in!). Children learnt where organs live on our speical organ tunic, and found out learnt why Homer Simpson may have a liver problem! 

PSC Annual Support Meetings...

PSC Support is a patient led support group for people suffering from the inflammatory liver disease primary sclerosing cholangitis. Prof David Adams updated the group on our current research including the facilities and trials portfolio established through the NIHR BRU. We are also a participating centre for the National PSC Genetics study. Their newsletter has up-to-date information and contact details.  The last meetings were on the 10th March 2012 and Saturday 9th March 2013.  Watch this space for the date of the 2014 PSC annual support meeting.

Current Clinical Trials ...

The NIHR Birmingham Liver BRU undertake continual research into the causes of liver disease, and potential new drugs or treatments.

Three of our current trials look at:
- non-alcoholic fatty liver disease
- the use of stem cells to repair liver damage
- blocking Hepatitis C particles infecting a new liver after transplantation

Liver Disease Video

 

 

 

 

 

 

Watch this short YouTube video to find out more

Get involved - your views are important!

We know that your views and opinions can help us to develop a better research programme. Our Patient and Public Involvement panel is a small group of volunteers who come together twice a year to listen to presentations from doctors on the latest liver research and hear how current clinical trials are progressing. They also suggest future research plans, help review patient information sheets and help produce articles for Liver FOCUS. We greatly value their ideas, suggestions and opinions.  They also advise how we can best communicate our research findings to the public.

Panel members have no special training, they are just interested in liver disease or have perhaps had experience of liver disease (personal or through family/friends).  We can reimburse travel and parking costs up to £40 each time.

GET INVOLVED!  Review Panel Application Form:

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  • [*This is a summary of independent research funded by the National Institute for Health Research (NIHR)’s Bimingham Liver Biomedical Research Unit programme. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health]