We believe that patients should have a say in research that is potentially for their benefit. The Birmingham Rheumatology Research Patient Partnership (R2P2) is a group of patients who support research studies at the University of Birmingham, Sandwell and West Birmingham Hospitals NHS Trust and University Hospitals Birmingham NHS Foundation Trust.
Research is what we do when we have a question we want to answer or a problem we want to resolve. Health research aims to generate the knowledge that will allow health organisations to deliver better health care to population they look after.
Within the Rheumatology Research Group we recognise the importance of involvement of patients and members of the general public in all aspects of the research process, including initial project development and grant applications, the design and implementation of the studies as well as their dissemination. As a member of R2P2 you can get involved in existing research projects as well as being involved in the set-up of new research.
New information resources
In collaboration with our European partner organizations and patient research partners, we have developed two informational resources for people who may be at an elevated risk of developing rheumatoid arthritis in the future. One booklet is for relatives of people who have rheumatoid arthritis, and the other booklet is for people who have joint symptoms. The development of these leaflets has been informed by the interview studies that we have carried out for the EuroTEAM project, to investigate perceptions of risk held by people who are at risk of developing rheumatoid arthritis.
We are currently conducting focus groups to evaluate these resources, and will post more details of our findings soon. In the meantime, if you would like to tell us what you think about either of these booklets we would be delighted to hear from you! Please fill in and submit this form, or alternatively you can email us at firstname.lastname@example.org