Useful links

Arthritis related patient organisations & local support groups...

  • Arthritis Care:

Promotes the health, wellbeing and independence of people with arthritis through services, support, self-help, information and influence.

Helpline: 0808 800 4050
Email: info@arthritiscare.org.uk
Helpline: (under 26): 0808 800 2000
Email: thesource@arthritiscare.org.uk
Website: www.arthritiscare.org.uk

  • Arthritis Research UK:

Produces a range of booklets and factsheets to help people understand their conditions and cope with daily living.

Tel: 0870 850 5000
Email: info@aenquiries@arthritisresearchuk.org 
Website: www.arthritisresearchuk.org/arthritis_information.aspx

  • National Rheumatoid Arthritis Society:

Support for people affected by rheumatoid or juvenile idiopathic arthritis.

Helpline: 0800 298 7650
Email: enquiries@rheumatoid.org.uk
Website: www.rheumatoid.org.

There are various NRAS support groups in the East and West-midland area:  Birmingham North NRAS Group; Heart of England NRAS Group - Solihull; Leicester NRAS Group; Lincoln NRAS Group & Worcester NRAS Group.

For more information about the groups, contact NRAS on 0845 458 3969 more information

Other patient organisations...

  • British Sjögren's Syndrome Association (BSSA)

Website: http://www.bssa.uk.net

  • Fibromyalgia Association UK

Support, advice and information for people with fibromyalgia, and health professionals.

Helpline: 0845 345 2322
Email: fmauk@hotmail.com
Website: www.fibromyalgia-associationuk.org

  • Lupus UK:

Provides information about diagnosis and available treatments for people living with Lupus.

Tel: 01708 731251
Email: headoffice@lupusuk.org.uk
Website: www.lupusuk.org.uk

  • National Ankylosing Spondylitis Society:

Provides support, advice and information for the condition Ankylosing Spondylitis.

Tel: 020 8948 9117
Email: nass@nass.co.uk
Website: www.nass.co.uk

  • National Association for the Relief of Paget's Disease:

Support and information on available treatments for people with Paget's disease, and health professionals.

Tel: 0161 799 4646
Email: director@paget.org.uk
Website: www.paget.org.uk

  • National Osteoporosis Society:

Information, research and details of support groups for people with osteoporosis, and health professionals.

Helpline: 0845 450 0230
Email: info@nos.org.uk 
Website: www.nos.org.uk

  • Psoriasis & Psoriatic Arthritis Alliance:

Provides information, publications and training on psoriasis and psoriatic arthritis.

Tel: 0870 770 3212
Email: info@papaa.org
Website: www.papaa.org

Useful links for Patient Research Partners

  • INVOLVE:

INVOLVE is an organisation that supports greater public involvement in NHS, public health and social care research. Provides information both to patients and public thinking about becoming involved in research and researchers thinking about PPI.

Tel: 023 8065 1088 
Fax: 023 8065 2885 
Email: admin@invo.org.uk 
Website: http://www.invo.org.uk/  
o Public Involvement Pack (PIP): http://www.invo.org.uk/posttypepublication/the-public-information-pack-pip/   
o Jargon buster: http://www.invo.org.uk/resource-centre/useful-information/jargon-buster/ 

Patients and the public

This site is for patients and members of the public looking for information on the research the Health Research Authority regulates and approves, taking part or getting involved in research and how the HRA involves the public in the work they do.

Find out more

Eular

The national organisations of people with arthritis/rheumatism across Europe work together via the EULAR Standing Committee of PARE. Each member country is represented with one delegate in the committee. The standing committee meets annually on the occasion of the EULAR congress to review progress and plan future activities. Throughout the year, liaison persons, appointed by the organisations, ensure a smooth communication flow.

Find out more

 

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