Liz is a Research Fellow working on a Sense funded project exploring the impact that diagnosis has for people with Usher syndrome. Liz is interested in exploring the effect of changes in Usher syndrome and the knowledge that someone has Usher, on the life and experiences of a person with Usher.
She will be interviewing people who are about 15, about 25, and about 45 years old, who have type 1, type 2, and type 3 Usher. It is important to Liz that research participants are able to take part using their preferred method of communication e.g. BSL, deafblind manual alphabet, tactile communication. Find out more about this research on the project webpage http://www.birmingham.ac.uk/research/activity/education/projects/deafblind-attending-rare-syndrome-clinics.aspx
Liz has 14 years of practical experience of working with people who have a dual sensory impairment, as well as additional disabilities.