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Useful links

• Syndrome groups
• Other research centres
• Other useful websites

Syndrome groups

Angelman Syndrome Support, Education and Research Group
Cornelia de Lange Syndrome Foundation (UK and Ireland)
Cornelia de Lange Syndrome Association (Australasia)
The Cri du Chat Syndrome Support Group
Down’s Syndrome Association
The Fragile X Society
Lowe Syndrome Association
Lowe Syndrome Trust
Prader-Willi Syndrome Association
Research Autism
Rubinstein-Taybi Syndrome UK Support Group
Smith-Magenis Syndrome Foundation UK
Sotos Syndrome Support Association
Tuberous-Sclerosis Association
UNIQUE

Other research centres

• Bangor University - Special Needs Unit 
• Cardiff University – Welsh Centre for Learning Disabilities 
• Lancaster University - Centre for Disability Research
• McGill University 
• The Institute of Psychiatry – Professor Patricia Howlin 
• The University of Cambridge - The Cambridge Intellectual & Development Disabilities Research Group
• The University of Kent – The Tizard Centre 

Other useful websites

• Cerebra 
• Contact a family 
• Foundation for People with Learning Disabilities 
• The Challenging Behaviour Foundation 
• The Seattle Club 
• The Society for Study of Behavioural Phenotypes