Patient and public involvement and engagement (PPIE) describes the different ways in which members of the public can inform and shape research.
PPIE is different to research participation where members of the public can directly take part in a study, for example by being given a new treatment as part of a clinical trial.
Public involvement describes when members of the public use their views and personal experience of illness and treatment to help to prioritise, plan, deliver, evaluate and share health and social care research.
Public engagement refers to activities or events where information about, and findings from, our research are shared with the public.
“Public engagement describes the myriad of ways in which the activity and benefits of…research can be shared with the public. Engagement is by definition a two-way process, involving interaction and listening, with the goal of generating mutual benefit.”
- National Coordinating Centre for Public Engagement