The Carer Experience Scale (CES)

The Carer Experience Scale (CES) is a profile measure of the caring experience for use in economic evaluation. Unlike most profile measures used in economic evaluations, the CES focuses on 'care-related quality of life' rather than health-related quality of life, comprising attributes that are pertinent to unpaid carers.

The CES comprises six attributes:

  • Activities
  • Support (from family and friends)
  • Assistance (from organisations)
  • Fulfillment
  • Control
  • Getting-on (with the care recipient)

The CES profile measure was developed using qualitative methods. A set of index values for the CES have been estimated using a best-worst scaling study of unpaid carers for older people in England.

CES Registration...

Before using the CES in your study please register with us first. You do not have to pay to use the measure, but please complete the registration form

Once you have completed the form please email a copy to Hareth Al-Janabi 

CES Questionnaire...

You can download a copy of the CES questionnaire by clicking on the following link: CES questionnaire

Please remember to register with us before you start using the form 

If you are interested in translating the CES into another language please contact Hareth Al-Janabi 

Download guidance on the scoring of the CES instrument and for the STATA code 

References...

The development of the Carer Experience Scale is described in:

Al-Janabi H, Coast J, Flynn TN.  What do people value when they provide unpaid care? A meta-ethnography with interview follow-up.  Social Science & Medicine.  2008;67:111-121.

Index values for the Carer Experience Scale appear in:

Al-Janabi H, Flynn T, Coast J.  Estimation of a preference-based Carer Experience Scale. Medical Decision Making. 2011; 31(3):458-68.

An assessment of the construct validity of the CES is reported in:

Goranitis I, Coast J & Al=Janabi H. An investigation into the construct validity of the Carer Experience Scale (CES). Quality of Life Research DOI 10.1007/s11136-013-0616-1

CES Applications...

The CES is currently being used in the UK and Australia and in cross sectional studies studies of carer wellbeing and service evaluations. 

If you are interested in discussing whether the CES might be useful in your study please contact Hareth Al-Janabi