The IAHR were invited by the HSE and the Register Steering Group to tender a proposal for the administration of the Register. The tender was successful and the IAHR have fulfilled the role since 2002. Primarily their work has involved the identification and recruitment of individuals to the Register and organizing and formatting the central database. The IAHR and the University also assume responsibility for the secure storage of the data and its use in the initial follow-up study.
A guide to the Universities data protection policy can be found by clicking here.