ICECAP-SCM

The ICECAP Supportive Care Measure (ICECAP-SCM) has been developed as a tool for use in economic evaluation conducted in an end of life setting. The descriptive measure covers the attributes of: 

Choice – expressed in the questionnaire as ‘Having a say’ with questions worded as ‘being able to make decisions about my life and care’.  

Love and affection – expressed as ‘Being with people who care about you’ with questions worded as ‘being able to be with people who care about me’.  

Physical suffering – expressed as ‘Physical suffering’ with questions worded as ‘experiencing significant physical discomfort’.  

Emotional suffering – expressed as ‘Emotional suffering’ with questions worded as ‘experiencing emotional suffering’.  

Dignity – expressed as ‘Dignity’ with questions worded as ‘being able to maintain my dignity and self-respect’.  

Being supported – expressed as ‘Being supported’ with questions worded as ‘being able to have the help and support that I need’.  

Preparation – expressed as ‘Being prepared’ with questions worded as ‘Having had the opportunity to make the preparations I want to make’. 

The levels for each attribute are expressed in terms of capabilities. As part of the European Research Council funded project, EconEndLife, the measure is currently undergoing assessments of validity; if you might be interested in using the measure or contributing to this work, please contact us to discuss further.

Find out more about the EconEndLife project, being conducted by researchers at the University of Birmingham by visiting the site

This video by Elisabeth Huynh, explains how values have been elicited for the ICECAP-SCM.

ICECAP-SCM questionnaire

Download a copy of the ICECAP-SCM

Please remember to register with us before you start, by using the Registration form docx 26 Kb

Once you have completed the form please email a copy to Samantha Husbands

A proxy version of the questionnaire is also available upon registration.

ICECAP-SCM Translations

  • A German translation of the ICECAP-SCM has been developed and validated by Marie Dorow, Janine Stein, Paula Liegert, Carolyn Edwards and Steffi Riedel-Heller from the University of Leipzig, Medical Faculty, Institute of Social Medicine, Occupational Health and Public Health (ISAP), and Judith Dams and Hans-Helmut König from the Department of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf (UKE).

ICECAP_validiert_German

  • A Swedish version of ICECAP-SCM has been developed by Maria Schelin and colleagues from the Institute for Palliative Care, Lund University, as part of the iLIVE project.  The translation is available upon request from Philip Kinghorn
  • A French translation of the ICECAP-SCM has been developed by Clémence Thébaut from the University of Limoges (France) and Cécile Cornet from the CHU of Besançon (France), with the help of Lisa Sharman and Jill Salomon from the University of Limoges. This work was conducted as part of the Evaluation of Integrated palliative day-care hospital for patients with advanced cancer, funded by Institut Curie (France) under the supervision of Carole Bouleuc, Institut Curie (Principal Investigator) and Laura Thery (Department of Supportive and Palliative Care, Institut Curie).  To obtain a version of the translation, contact Philip Kinghorn.
  • A Norwegian translation of ICECAP-SCM has been developed by Kjersti Solvåg and Grethe Skorpen Iversen from Haukeland University Hospital, Bergen, Norway. The translation was developed as part of the EU-funded Horizon 2020 project iLIVE: Live well, die well. A research program to support living until the end. To obtain a version of the translation, contact Philip Kinghorn.
  • A Spanish version of the ICECAP-SCM has been developed by Pilar Barnestein-Fonseca1, Maria Luisa Martín-Rosello1, Vilma Adriana Tripodoro2, Verónica Inés Veloso2and Silvina Montilla3 from 1CUDECA Institute for Training and Research in Palliative Care, CUDECA Foundation, Málaga, Spain, 2Instituto Pallium Latinoamérica, Buenos Aires, Argentina and 3Instituto de Investigaciones Médicas A.Lanari, Universidad de Buenos Aires, Argentina.  The translation was undertaken as part of the iLIVE project study/project.  Work was funded by the European Union’s Horizon 2020 program under grant agreement ID: 825731.  The Spanish translation is available upon request from Philip Kinghorn.

References

Information about the general ‘EconEndLife’ framework, within which the ICECAP-SCM and ICECAP-CPM can be applied, can be found in:

The selection of the attributes for ICECAP-SCM (Supportive Care Measure) is described in:

Pilot valuation work for the ICECAP-SCM is described in:

Papers relating to the use of the ICECAP-SCM: