Have you had a diagnosis of apical, or pelvic organ prolapse? (Apical prolapse is where the womb, or neck of the vagina bulge or protrude into the vagina). Would you be interested in helping to shape a research study exploring surgical options for treatment?
The C-POP study is aiming to talk to women who are eligible for the two types of surgery for apical prolapse. The study team want to find out about women’s thoughts and experiences around these treatment options and explore if a trial comparing the two options would be feasible in the future.
The team at Birmingham is working with our lay partners including our patient advocates, Public Engagement at the Royal College of Obstetricians and Gynaecologists, and LiveFreeUTI to recruit and develop a Patient Advisory Group of up to 10 members.
The Patient Advisory Group (PAG) will work alongside the wider study team in several ways. We anticipate members of the PAG may help us check that the documents we send out are clear and understandable to people who want to take part in the study. In addition, the PAG will be invaluable supporting the study team to share what we have found out in non-clinical language that patients everywhere can understand.
More Information on the Patient Advisory Group
The C-POP study began in May 2023 and will run until Dec 2024. There will be four PAG engagement time points in this time. Online meetings will be held on weekdays and will take place virtually via Microsoft Teams. For people who prefer not to attend online meetings, documents will be posted out for their input and discussions with a patient advocate will take place over the telephone.
You can contact the study team to find out more or have a chat about getting involved: email@example.com or call/text on 07717444813
Estimated Patient Advisory Group start date: July 2023
Timeline: July 2023 to September 2024
Approximate time commitment: 16 hours total
Type of engagement: Virtual video call sessions, some reading, telephone discussions.
Number of video call sessions: 4 sessions are anticipated (July 2023, October 2023, April 2024, September 2024)
Payment: Participants will be reimbursed for their time, at the standard rate for Patient and Public Involvement
How can you get involved?
If you are based in the UK and have had pelvic organ prolapse and have been eligible for surgical treatment, whether you had the surgery or not, you may be eligible to participate. If you are interested in learning more about the Patient Advisory Group, please complete this screening questionnaire. Selected participants will be contacted by the team at University of Birmingham so they can provide more information.