The legal framework for information about origins in assisted reproduction requires reform. Assisted reproductive technologies offer opportunities for family formation, but such technologies challenge traditional conceptions of legal parenthood, because genetic, gestational, and social parenthood are separated.
This separation leads to questions regarding how information about genetic, gestational, and social origins should be managed by the State regarding both: (a) the collection of information, and (b) access to information. Currently, there is inconsistency within the law regarding origin information in gamete donation and surrogacy, for which there is no apparent policy justification. Moreover, novel assisted reproduction techniques - including in-vitro gametogenesis, mitochondrial replacement therapy, ectogenesis and uterus/ovary transplants - raise even more challenging questions. For example, in-vitro gametogenesis allows for the creation of gametes from skin or blood cells, meaning that a child conceived with such techniques may not have two genetic parents and mitochondrial donation results in offspring that have genetic connections to three individuals.
Proposals for reform under strand (a) will discuss which information should be collected, but also how it should be collected. It will make proposals about whether origin information should include details of surrogates, gamete donors, womb/ovary donors, mitochondrial donors, and/or half siblings and the most appropriate bodies for the collection and retention of this information. Proposals under strand (b) will discuss whether, when and how this information could be accessed by those affected. This will include proposals about who should control the release of information and the manner in which it should be done.
Dr Alan Brown and Dr Katherine Wade