End of Life Care Research Programme (EoLC)

End of Life Care Research Programme (EoLC) group

End of life care research in the School of Nursing is focussed on supportive care; service design and improvement in end of life care; decision making at the end of life; quality measures for end of life care; and bereavement care. We collaborate with numerous academic and partner organisations.

Programme lead

Alistair Hewison

Dr Alistair Hewison

Reader in the Organisation and Management of Care
End-of-Life Care Research Programme Lead
Lead for Clinical Leadership in the Centre for Health and Social Care Leadership

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Our research programme

The aims of the End-of-Life Research Programme in the School of Nursing at the University of Birmingham are to:

  • Undertake high quality research in palliative and end-of-life care which has patient benefit and service impact;
  • Publish research and scholarly outputs in high impact academic journals;
  • Work collaboratively with practice partners and service users to ensure our research and scholarship is relevant, timely and has impact;
  • Build capacity in palliative and end-of-life care research.

We are a multi-disciplinary research group with members from nursing, medicine, pharmacy, social sciences and practice partner organisations including hospices, acute NHS Trusts and other service providers. Our international activity is increasing and we are a founder member of RAISE (Research Alliance for the International Study of End of Life Care). Members of the Programme also contribute to the development of end of life care services locally, nationally and internationally by serving on working groups, expert committees and panels. Our overall aim is to have a positive impact on the provision of end of life care services.

End of Life Care Research members

Current projects

  • Guo P (PI) and Bailey C et al Improving person-centred nurse-led care for primary care patients with progressive multimorbid illness (Burdett Trust for Nursing) 2020-2021
  • Riley R, Hewison A (CI) et al   Identifying the impact of a colleague’s suicide on NHS staff, and their support needs, to inform postvention guidance (NIHR RfPB) 2020-2022
  • Al-Janabi H. and  Efstathiou  N Techniques to include carers' quality of life in economic evaluation (Funded by NIHR)
  • Downar J and Efstathiou N ICU BEREAVE feasibility study (Funded by Ottawa Hospital charitable fund)
  • Bailey C (PI), Burt R, Arif A, MaCartney J, Young A. REPliCA: Reasons for Emergency Palliative Care Admissions 2018-2020

Publications

Mitchell, P.M., Coast, J., Myring, G., Ricciardi, F., Vickerstaff, V., Jones, L., Zafar, S., Cudmore, S., Jordan, J.,  McKibben, L.,  Graham-Wisener, L., Finucane, A., Hewison, A. et al  Haraldsdottir, E., Brazil, K. and Kernohan, W.G. (In press) Exploring the costs, consequences and efficiency of three types of Palliative Care Day Services in the UK: a pragmatic before-and-after descriptive cohort study.  BMC Palliative Care 19 (119) https://doi.org/10.1186/s12904-020-00624-y

Rima A Abdul-Khalek,R.A., Guo, P. et al (2020) The economic burden of cancer care for Syrian refugees: a population-based modelling study.  Lancet Oncology 21, 637–44

Hewison A, Zafir S and Efstathiou N (2020)  Bereavement Support in the UK- a rapid evidence assessment.  Bereavement Care 39 (2), 69-78.

Batstone, E., Bailey C. and Hallett, N. (2020) Spiritual care provision to end‐of‐life patients: A systematic literature review. Journal of Clinical Nursing.  

https://doi.org/10.1111/jocn.15411

Canaway, A., Al-Janabi, H., Kinghorn, P. Bailey C. and Coast J. (2019) Close-Person Spill-Overs in End-of-Life Care: Using Hierarchical Mapping to Identify Whose Outcomes to Include in Economic Evaluations. PharmacoEconomics 37, 573-583.