Karen Shaw’s initial appointment to the University was in 2000 where she worked as the National Programme Co-ordinator for a project to develop and evaluate a programme of transitional care for young people with arthritis. This won the BUPA 2005 Clinical Excellence Award for translating research into clinical practice and was used to support national policy and best practice guidance in transitional care (e.g. Transition: getting it right for young people, DH, 2006; Transition: Moving on Well. A good practice guide for health professionals and their partners, DH 2008).
In 2005, Karen became a Birmingham Research Fellow (based in Nursing and Physiotherapy). During this time, she contributed to 10 research projects and supported teaching in research methods. Key projects included the first ever study to explore generic prognostic indicators in children’s end of life care, and validation and revision of the Spectrum of Children’s Palliative Care Needs; a prognostic based framework to facilitate the collection of standardised data. This is designed for use by those involved in the planning, delivery and evaluation of children’s palliative care services.
Karen joined CLAHRC West Midlands in 2014 and is leading two projects to evaluate (i) the Advanced Care Plan for a Child or Young Person, (ii) Magnolia House, a new facility at Birmingham Children’s Hospital to support families and staff with sharing life-altering information and bereavement care. She is also a co-applicant on a prospective pilot study of home monitoring in adults with cystic fibrosis (HOME-CF).