Recent publications
Book
Randall, D, Neilson, S & Downing, J (eds) 2024, Children's Palliative Nursing Care. 1 edn, Routledge. https://doi.org/10.4324/9781003384861
Article
Neilson, S, Kelsall-Knight, L, Menzies, J, Duncan, HP & Homes, B 2025, 'Exploring the provision and structure of paediatric critical care outreach teams in the UK and Ireland: A national questionnaire study', BMJ Paediatrics Open.
Floredin, I, Husbands, S, Neilson, S, Mitchell, PM & Coast, J 2025, 'Understanding what matters to young people at the end of life: A qualitative study to inform the development of a young person end of life capability measure', Social Science and Medicine, vol. 383, 118335. https://doi.org/10.1016/j.socscimed.2025.118335
Pettitt, NJ, Petrella, AR, Neilson, S, Topping, A & Taylor, RM 2024, 'Psychosocial and Support Needs of the Main Caregiver for Adolescents and Young Adults Undergoing Treatment for Cancer', Cancer Nursing. https://doi.org/10.1097/NCC.0000000000001352
Adistie, F, Neilson, S, Shaw, KL, Bay, B & Efstathiou, N 2024, 'The elements of end-of-life care provision in paediatric intensive care units: a systematic integrative review', BMC Palliative Care, vol. 23, no. 1, 184. https://doi.org/10.1186/s12904-024-01512-5
Abdin, S, Heath, G, Neilson, S, Byron-Daniel, J & Hooper, N 2022, 'Decision-making experiences of health professionals in withdrawing treatment for children and young people: a qualitative study', Child: Care, Health & Development, vol. 48, no. 4, pp. 531-543. https://doi.org/10.1111/cch.12956
Newham, R, Hewison, A, Neilson, S & Afoko, V 2022, 'Moral distress experienced by neonatal intensive and paediatric care nurses in northern Ghana: a qualitative study', Journal of Research in Nursing, vol. 27, no. 6, pp. 519-529. https://doi.org/10.1177/17449871221122022
Neilson, S, Randall, D, Mcnamara, K & Downing, J 2021, 'Children's Palliative care education and training: developing an education standard framework and audit', BMC Medical Education, vol. 21, 539. https://doi.org/10.1186/s12909-021-02982-4
Bradbury, M, O'Brien, C, Giles, N, Fenton, S, Neilson, S & Duda, JL 2021, 'Sedentary behaviour in non-ambulant children and young people with physical disabilities: a systematic search and review protocol', BMJ open, vol. 11, no. 12, e053077. https://doi.org/10.1136/bmjopen-2021-053077
Chapter
Randall, D, Neilson, S & Downing, J 2024, Introduction and categorisation of children’s palliative care needs and prevalence. in D Randall, S Neilson & J Downing (eds), Children's Palliative Nursing Care. 1st edn, Routledge, pp. 1-11. https://doi.org/10.4324/9781003384861-1
Neilson, S & Daniels, A 2024, Learning to design, deliver and evaluate children’s palliative care education. in D Randall, S Neilson & J Downing (eds), Children's Palliative Nursing Care. 1st edn, Routledge, London, pp. 271-295. https://doi.org/10.4324/9781003384861-14
Fleming, S, Queen, H & Neilson, S 2024, Symptom Management. in D Randall, S Neilson & J Downing (eds), Children's Palliative Nursing Care. 1 edn, Routledge, London, pp. 155-208. https://doi.org/10.4324/9781003384861-10
Literature review
Afoko, V, Hewison, A, Newham, R & Neilson, S 2023, 'Moral Distress in Nurses in Developing Economies: An Integrative Literature Review', Journal of Research in Nursing, vol. 28, no. 8, pp. 609-627. https://doi.org/10.1177/17449871231216606
Review article
Downing, J, Randall, D, Mcnamara-Goodger, K, Ellis, P, Palat, G, Ali, Z, Hunt, J, Kiman, R, Friedel, M & Neilson, S 2025, 'Children’s palliative care and public health: position statement', BMC Palliative Care, vol. 24, 89. https://doi.org/10.1186/s12904-025-01653-1
Ontrakrai, N, Bailey, C, Valler, T & Neilson, S 2025, 'Palliative care training programmes for community volunteers working with children and their families: a scoping review', Frontiers in public health, vol. 13, 1469854. https://doi.org/10.3389/fpubh.2025.1469854
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