Dr Susan Neilson PhD, MSc, BSc(Hons), DPSN DN, RSCN, RGN, PGCLTHE

Dr Susan Neilson

School of Nursing and Midwifery
Associate Professor

Contact details

Address
Institute of Clinical Sciences
University of Birmingham
Edgbaston
Birmingham
B15 2TT
UK

Dr Sue Neilson is an Associate Professor in the School of Nursing and Midwifery.  She is a qualitative methodologist, her research focusing on, but not exclusive to, children and young people’s palliative and end of life care and bereavement support.  

Sue’s work also has a strong focus on education standard frameworks.

Qualifications

  • Post-Graduate Certificate Learning and Teaching in Higher Education 2017.
  • Non-medical independent and supplementary prescribing, 2010.
  • PhD Paediatric palliative care, 2009.
  • MSc Cancer Care, 1998.
  • BSc (Hons) Health Studies, 1995.
  • DPSN DN Professional Studies: District Nursing, 1993.
  • RSCN, 1988.
  • RGN, 1983.

Biography

Sue Neilson has an extensive clinical nursing background in paediatric oncology and holds an honorary contract with the palliative care team at Birmingham Women’s and Children’s Hospital.

Sue has undertaken research examining palliative, end of life and bereavement care for children and young people in both hospital and community settings. Her work to date has focused on the experiences of the child/young person, family and health professional. 

Teaching

Undergraduate

Post-graduate

Principles of palliative care for children and young people

Sue also contributes to other modules in the areas of palliative, end of life, bereavement care and research methods.

Postgraduate supervision

Sue is interested in supervising doctoral research students in the following areas:

  • Palliative and end of life care
  • Bereavement support
  • Nursing
  • Research using qualitative methodology

If you are interested in studying in any of these subject areas please contact Sue on the contact details above or for any general doctoral research enquiries, please email mds-gradschool@contacts.bham.ac.uk

Research

Research themes

  • Health care professionals experience of palliative care.
  • Children and young people’s palliative and end of life care.
  • Bereavement support.
  • Qualitative methodology.

Research Activity

Children and young people’s palliative, end of life and bereavement care.

The main emphasis of Sue’s work has been in paediatric palliative and end of life care. Areas have included health professional’s experiences of providing palliative care to children and young people in the family home and exploring the role of the GP in paediatric palliative and end of care and bereavement support.

Other activities

  • End of Life Research Programme, School of Nursing, University of Birmingham.
  • Birmingham Woman’s and Children’s Hospital Research Foundation Scientific Committee
  • Birmingham Woman’s and Children’s Hospital Palliative and Bereavement Research Interest Group (Chair).
  • West Midland Paediatric Palliative Care Network Research sub-group (Co-vice chair).
  • Birmingham Children’s Hospital, Nurses, Midwives and Allied Health Professionals Research Group (NMAHPS).

Publications

Recent publications

Book

Randall, D, Neilson, S & Downing, J (eds) 2024, Children's Palliative Nursing Care. 1 edn, Routledge. https://doi.org/10.4324/9781003384861

Article

Neilson, S, Kelsall-Knight, L, Menzies, J, Duncan, HP & Homes, B 2025, 'Exploring the provision and structure of paediatric critical care outreach teams in the UK and Ireland: A national questionnaire study', BMJ Paediatrics Open.

Floredin, I, Husbands, S, Neilson, S, Mitchell, PM & Coast, J 2025, 'Understanding what matters to young people at the end of life: A qualitative study to inform the development of a young person end of life capability measure', Social Science and Medicine, vol. 383, 118335. https://doi.org/10.1016/j.socscimed.2025.118335

Pettitt, NJ, Petrella, AR, Neilson, S, Topping, A & Taylor, RM 2024, 'Psychosocial and Support Needs of the Main Caregiver for Adolescents and Young Adults Undergoing Treatment for Cancer', Cancer Nursing. https://doi.org/10.1097/NCC.0000000000001352

Adistie, F, Neilson, S, Shaw, KL, Bay, B & Efstathiou, N 2024, 'The elements of end-of-life care provision in paediatric intensive care units: a systematic integrative review', BMC Palliative Care, vol. 23, no. 1, 184. https://doi.org/10.1186/s12904-024-01512-5

Abdin, S, Heath, G, Neilson, S, Byron-Daniel, J & Hooper, N 2022, 'Decision-making experiences of health professionals in withdrawing treatment for children and young people: a qualitative study', Child: Care, Health & Development, vol. 48, no. 4, pp. 531-543. https://doi.org/10.1111/cch.12956

Newham, R, Hewison, A, Neilson, S & Afoko, V 2022, 'Moral distress experienced by neonatal intensive and paediatric care nurses in northern Ghana: a qualitative study', Journal of Research in Nursing, vol. 27, no. 6, pp. 519-529. https://doi.org/10.1177/17449871221122022

Neilson, S, Randall, D, Mcnamara, K & Downing, J 2021, 'Children's Palliative care education and training: developing an education standard framework and audit', BMC Medical Education, vol. 21, 539. https://doi.org/10.1186/s12909-021-02982-4

Bradbury, M, O'Brien, C, Giles, N, Fenton, S, Neilson, S & Duda, JL 2021, 'Sedentary behaviour in non-ambulant children and young people with physical disabilities: a systematic search and review protocol', BMJ open, vol. 11, no. 12, e053077. https://doi.org/10.1136/bmjopen-2021-053077

Chapter

Randall, D, Neilson, S & Downing, J 2024, Introduction and categorisation of children’s palliative care needs and prevalence. in D Randall, S Neilson & J Downing (eds), Children's Palliative Nursing Care. 1st edn, Routledge, pp. 1-11. https://doi.org/10.4324/9781003384861-1

Neilson, S & Daniels, A 2024, Learning to design, deliver and evaluate children’s palliative care education. in D Randall, S Neilson & J Downing (eds), Children's Palliative Nursing Care. 1st edn, Routledge, London, pp. 271-295. https://doi.org/10.4324/9781003384861-14

Fleming, S, Queen, H & Neilson, S 2024, Symptom Management. in D Randall, S Neilson & J Downing (eds), Children's Palliative Nursing Care. 1 edn, Routledge, London, pp. 155-208. https://doi.org/10.4324/9781003384861-10

Literature review

Afoko, V, Hewison, A, Newham, R & Neilson, S 2023, 'Moral Distress in Nurses in Developing Economies: An Integrative Literature Review', Journal of Research in Nursing, vol. 28, no. 8, pp. 609-627. https://doi.org/10.1177/17449871231216606

Review article

Downing, J, Randall, D, Mcnamara-Goodger, K, Ellis, P, Palat, G, Ali, Z, Hunt, J, Kiman, R, Friedel, M & Neilson, S 2025, 'Children’s palliative care and public health: position statement', BMC Palliative Care, vol. 24, 89. https://doi.org/10.1186/s12904-025-01653-1

Ontrakrai, N, Bailey, C, Valler, T & Neilson, S 2025, 'Palliative care training programmes for community volunteers working with children and their families: a scoping review', Frontiers in public health, vol. 13, 1469854. https://doi.org/10.3389/fpubh.2025.1469854

View all publications in research portal