Recent publications
Article
the PC-COS Children Study Group, Seylanova, N, Chernyavskaya, A, Degtyareva, N, Mursalova, A, Ajam, A, Xiao, L, Aktulaeva, K, Roshchin, P, Bobkova, P, Aiyegbusi, OL, Anbu, AT, Apfelbacher, C, Asadi-Pooya, AA, Ashkenazi-Hoffnung, L, Brackel, C, Buonsenso, D, De Groote, W, Diaz, JV, Dona, D, Galvin, AD, Genuneit, J, Goss, H, Hughes, SE, Jones, CJ, Kuppalli, K, Malone, LA, Mcfarland, S, Needham, DM, Nekliudov, N, Nicholson, TR, Oliveira, CR, Schiess, N, Segal, TY, Sigfrid, L, Thorne, C, Vijverberg, S, Warner, JO, Were, WM, Williamson, PR & Munblit, D 2024, 'Core Outcome Measurement Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID) in Children and Young People: An International Delphi Consensus Study “PC-COS Children”', European Respiratory Journal. https://doi.org/10.1183/13993003.01761-2023
Phillips, T, Aiyegbusi, OL, Cockwell, P, Wheeler, DC, Kalra, PA, Taal, MW & Fraser, S 2024, 'Potentially modifiable factors associated with health-related quality of life among people with chronic kidney disease: baseline findings from the National Unified Renal Translational Research Enterprise CKD (NURTuRE-CKD) cohort', Clinical Kidney Journal. https://doi.org/10.1093/ckj/sfae010
Hughes, SE, McMullan, C, Aiyegbusi, OL, Shaw, K, Kinsella, F, Ferguson, P, Khatsuria, F, Burns, D, Pyatt, L, Ansell, J, Chakera, E, Richardson-Abraham, J, Denniston, AK, Davies, EH, Craddock, C & Calvert, M 2024, 'Protocol for a mixed-methods study to develop and feasibility test a digital system for the capture of Patient-Reported Outcomes (PROs) in patients receiving Chimeric Antigen Receptor T-cell (CAR-T) therapies (The PRO-CAR-T Study)', BMJ open, vol. 14, no. 3, e085392. https://doi.org/10.1136/bmjopen-2024-085392
Aiyegbusi, OL, Cruz Rivera, S, Roydhouse, J, Kamudoni, P, Alder, Y, Anderson, N, Baldwin, RM, Bhatnagar, V, Black, J, Bottomley, A, Brundage, M, Cella, D, Collis, P, Davies, E-H, Denniston, AK, Efficace, F, Gardner, A, Gnanasakthy, A, Golub, RM, Hughes, SE, Jeyes, F, Kern, S, King-Kallimanis, BL, Martin, A, Mcmullan, C, Mercieca-Bebber, R, Monteiro, J, Peipert, JD, Quijano-Campos, JC, Quinten, C, Rantell, KR, Regnault, A, Sasseville, M, Schougaard, LMV, Sherafat-Kazemzadeh, R, Snyder, C, Stover, AM, Verdi, R, Wilson, R & Calvert, MJ 2024, 'Recommendations to address respondent burden associated with patient-reported outcome assessment', Nature Medicine. https://doi.org/10.1038/s41591-024-02827-9
Litchfield, I, Calvert, MJ, Kinsella, F, Sungum, N & Aiyegbusi, OL 2023, '"I just wanted to speak to someone - and there was no one...”: using Burden of Treatment Theory to understand the impact of a novel ATMP on early recipients', Orphanet Journal of Rare Diseases, vol. 18, no. 1, 86. https://doi.org/10.1186/s13023-023-02680-y
Maes, D, McMullan, C, Aiyegbusi, OL & Ford, S 2023, 'Clinician survey of current global practice for sarcoma surveillance following resection of primary retroperitoneal, abdominal, and pelvic sarcoma', European Journal of Surgical Oncology (EJSO). https://doi.org/10.1016/j.ejso.2023.107085
Turner, G, McMullan, C, Aiyegbusi, OL, Hughes, S, Walker, A, Jeyes, F, Adler, Y, Chong, A, Buckland, L, Stanton, DE, Davies, EH, Haroon, S & Calvert, M 2023, 'Co-production of a feasibility trial of pacing interventions for Long COVID', Research Involvement & Engagement, vol. 9, no. 1, 18. https://doi.org/10.1186/s40900-023-00429-2
Gorst, SL, Seylanova, N, Dodd, SR, Harman, NL, O'Hara, M, Terwee, CB, Williamson, PR, Needham, DM, Munblit, D, Nicholson, TR, PC-COS Study Group, Aiyegbusi, OL, Calvert, M, Haroon, S & Hughes, SE 2023, 'Core outcome measurement instruments for use in clinical and research settings for adults with post-COVID-19 condition: an international Delphi consensus study', The Lancet Respiratory Medicine. https://doi.org/10.1016/S2213-2600(23)00370-3
McMullan, C, Retzer, A, Hughes, S, Aiyegbusi, OL, Bathurst, C, Boyd, A, Coleman, J, Davies, EH, Denniston, A, Dunster, H, Frost, C, Harding, R, Hunn, A, Kyte, D, Malpass, R, McNamara, G, Mitchell, SA, Mittal, S, Newsome, P, Price, G, Rowe, A, van Reil, W, Walker, A, Wilson, R & Calvert, M 2023, 'Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial', Journal of Patient-Reported Outcomes, vol. 7, no. 1, 98. https://doi.org/10.1186/s41687-023-00634-3
Retzer, A, Baddeley, E, Sivell, S, Scott, H, Nelson, A, Bulbeck, H, Seddon, K, Grant, R, Adams, R, Watts, C, Aiyegbusi, OL, Kearns, P, Cruz Rivera, S, Dirven, L, Calvert, M & Byrne, A 2023, 'Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study', Neuro-oncology advances. https://doi.org/10.1093/noajnl/vdad096
Comment/debate
Aiyegbusi, OL & Fenton, A 2024, 'The disproportionate impact of rare kidney diseases on kidney failure', The Lancet.
Review article
Sakthivel, P, Mostafa, A & Aiyegbusi, OL 2024, 'Factors that influence the selection of conservative management for end stage renal disease – a systematic review', Clinical Kidney Journal, vol. 17, no. 1, sfad269. https://doi.org/10.1093/ckj/sfad269
Hughes, SE, Aiyegbusi, OL, McMullan, C, Turner, GM, Anderson, N, Cruz Rivera, S, Collis, P, Glasby, J, Lasserson, D & Calvert, M 2024, 'Patient-reported outcomes in integrated health and social care: A scoping review', JRSM Open, vol. 15, no. 3, pp. 1-9. https://doi.org/10.1177/20542704241232866
Aiyegbusi, OL 2023, 'COVID-19 related headaches: epidemiology, pathophysiology, impacts, and management', Current opinion in neurology. https://doi.org/10.1097/WCO.0000000000001219
Aiyegbusi, OL, McMullan, C, Hughes, SE, Turner, GM, Subramanian, A, Hotham, R, Davies, EH, Frost, C, Alder, Y, Agyen, L, Buckland, L, Camaradou, J, Chong, A, Jeyes, F, Kumar, S, Matthews, KL, Moore, P, Ormerod, J, Price, G, Saint-Cricq, M, Stanton, D, Walker, A, Haroon, S, Denniston, AK, Calvert, MJ, Brown, K, Singh Chandan, J, Gkoutos, GV, Jackson, LJ, Lord, JM, Marshall, T, Marwaha, S, Myles, P, Nirantharakumar, K, Rivera, SC, Sapey, E, Simms-Williams, N, Williams, T & Wraith, DC 2023, 'Considerations for patient and public involvement and engagement in health research', Nature Medicine, vol. 29, no. 8, pp. 1922-1929. https://doi.org/10.1038/s41591-023-02445-x
View all publications in research portal