Recent publications
Article
Mealings, K, Hughes, SE, Halvorsen, L, Nash, K, Coe, L-J, MacQueen, D, Ward, K & McMahon, CM 2026, 'Development and validation of a community-reported outcome measure of the value of school-based screening programmes for Indigenous populations: a mixed-methods study protocol', BMJ Open, vol. 16, no. 5, e111701. https://doi.org/10.1136/bmjopen-2025-111701
Meyer, S, Wild, J, Hughes, SE, Sheppard, P & Bant, S 2026, 'Individual Management Plan Outcome Score (IMP-OS): Psychometric Evaluation of an Adult Aural Rehabilitation Idiographic Patient-Reported Outcome Measure for Use in Audiology', SN Comprehensive Clinical Medicine, vol. 8, 67. https://doi.org/10.1007/s42399-025-02236-0
Hughes, SE, Sucher, CM, Laird, E & Ferguson, MA 2026, 'Living with Cochlear Implants (LivCI): development and validation of a new patient-reported outcome measure (PROM) of personal factors associated with living with cochlear implants', Health and Quality of Life Outcomes. https://doi.org/10.1186/s12955-026-02541-9
Guan, N, Turner, G, Hotham, R, Lange, D, Brown, K, McMullan, C, Hughes, S, Aiyegbusi, OL, Matthews, K, Jackson, L, Yahyouche, A, Alder, Y, Jeyes, F, Buckland, L, Chong, A, Stanton, DE, Calvert, M & Haroon, S 2026, 'Self-management of long COVID symptoms with over-the-counter medicines and other non-prescribed therapies: a cross-sectional survey', BMC Public Health.
Hughes, S, Hughes, BMA, Haroon, S, Hathaway, E, Anderson, N, McMullan, C, Newnham, M, Taylor, C, Denniston, A, Backhouse, S, Filer, A, Raza, K, Scarisbrick, J, Anderson, C, Lee, M, Watts, L, Hodgetts-Morton, V, Hillman, S, Mughal, F, Day, E, Sami, T, Jesani, A, Jackson, T, Collis, P, Peipert, JD & Calvert, M 2026, 'Symptom burden in multiple long-term conditions: an AI-supported, mixed-methods concept elicitation study', Journal of the Royal Society of Medicine.
Shaw, KL, Hughes, SE, Aiyegbusi, OL, Ansell, J, Chakera, E, Chakraverty, R, Chatterley, M, Ferguson, P, Khatsuria, F, Lloyd, R, McMullan, C, Peipert, JD, Pyatt, L, Yarosh, V & Calvert, MJ 2026, 'The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement', Journal of Patient-Reported Outcomes, vol. 10, 70. https://doi.org/10.1186/s41687-026-01036-x
NIHR MLTC Cross-NIHR Collaboration Methodologies workstream, Dambha-Miller, H, Simpson, G, Smith, L, Finney, J, Zghebi, SS, Hughes, SE, Keevil, VL, Yu, G, MacRae, C, Khunti, K & McCowan, C 2025, 'Addressing methodological challenges in multiple long-term conditions research: A stakeholder workshop using a nominal group technique method', Journal of multimorbidity and comorbidity, vol. 15. https://doi.org/10.1177/26335565251372222
Parmar, B, Henshaw, H, Howe, S, Dickinson, AM, Rolfe, C, Le Mere, P, Blondiaux-Ding, E, Musker, Z, Stevenson, R, Hughes, SE, Calvert, S, Stapleton, E & Turton, L 2025, '“I always feel like I’m the first deaf person they have ever met:” Deaf Awareness, Accessibility and Communication in the United Kingdom’s National Health Service (NHS): How can we do better?', PLOS ONE, vol. 20, no. 5, e0322850. https://doi.org/10.1371/journal.pone.0322850
Hughes, SE, Khatsuria, F, McMullan, C, Shaw, KL, Walker, A, Kinsella, F, Burns, D, Aiyegbusi, OL, Davies, EH, Ansell, J, Chakera, E, Craddock, C, Denniston, A, Lloyd, R, Ferguson, P, Chakraverty, R & Calvert, M 2025, 'Measure selection for an electronic patient-reported outcome (ePRO) system for CAR T-cell therapy patients: a modified Delphi consensus study', EClinicalMedicine, vol. 84, 103256. https://doi.org/10.1016/j.eclinm.2025.103256
McMullan, C, Haroon, S, Turner, G, Aiyegbusi, OL, Hughes, SE, Flanagan, S, Subramanian, A, Nirantharakumar, K, Davies, EH, Frost, C, Jackson, L, Guan, N, Alder, Y, Chong, A, Buckland, L, Jeyes, F, Stanton, DE & Calvert, M 2025, 'Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions', Scientific Reports, vol. 15, 14467. https://doi.org/10.1038/s41598-025-96319-6
McMullan, C, Calvert, M, Hughes, S, Pyatt, L, Kern, B, Shaw, K, Asfaw, B, Besley, C, Buckingham, N, Ellis, H, Farrow, C, Mazza, M, Miller, R, Irvine, D, Jones, C, John, E, Sheikh, Y, Pugh, G, Yiallouridou, C & Aiyegbusi, OL 2025, 'Patient and caregiver experiences of CAR T-cell therapy for blood cancer in the UK: a qualitative study', The Patient - Patient-Centred Outcomes Research. https://doi.org/10.1007/s40271-025-00757-3
Anderson, N, Hughes, S, Aiyegbusi, OL, Collis, P, Miller, R & Calvert, M 2025, 'Patient-reported outcomes in integrated care: a frontier of opportunities and challenges', International Journal of Integrated Care, vol. 25, 23. https://doi.org/10.5334/ijic.9828
Boisvert, I, Rivera, SC, Smith-Merry, J, Molony-Oates, B, Kecman, E & Hughes, SE 2024, 'A qualitative reflexive thematic analysis of innovation and regulation in hearing health care', BMC medicine, vol. 22, no. 1, 417. https://doi.org/10.1186/s12916-024-03627-1
Review article
Shaver, N, Dahroug, L, Vyas, N, McGuire, M, Tashin, A, Adedunye, D, Gauthier, S, Sterling, E, Collins, E, Hughes, SE, Rafferty, AM, Rafferty, E, Groot, G, Laframboise, W, Mann, C, Bhereur, A, Edwards, J, McQuillan, R, Theodoratou, E, Edjoc, R & Little, J 2026, 'Barriers and facilitators for return-to-work following post-COVID-19 condition: a scoping review', WORK: A Journal of Prevention, Assessment & Rehabilitation. https://doi.org/10.1177/10519815261454982
O'Mahoney, LL, Peace, A, Gillies, CL, Routen, A, Highton, PJ, Bedford, P, Abdala, R, Sathanapally, H, Chudasama, YV, Patel, R, Perera, R, Hughes, S, Walker, H, Funnell, MP & Khunti, K 2026, 'Outcome measurement for multiple long-term conditions research across health-care settings – an overview of reviews', BMC Medicine.
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