Recent publications
Article
Thomas, L, Preston, J, Hardwick, H, Peipert, JD & Oni, L 2026, 'A framework to amplify the voices of underrepresented children and young people in rare disease research', Journal of Patient-Reported Outcomes, vol. 10, no. 1, 75. https://doi.org/10.1186/s41687-026-01056-7
Roydhouse, J, Zola, A, Breslin, M, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, D 2026, 'A Single Item for Overall Side Effect Impact: Association with Clinician-Reported Adverse Events and Global Health', Clinical Trials. https://doi.org/10.1177/17407745251405412
Hurt, CN, Kuharic, M, Shaunfield, S, Beck, J, Bastian, A, Fowler, K, Jaeger, E, May, M, van den Berg, E, Friedewald, J & Peipert, JD 2026, 'Development of a conceptual model of BKV impacts on health-related quality of life in kidney transplant recipients: a qualitative study', Journal of Patient-Reported Outcomes, vol. 10, no. 1, 4. https://doi.org/10.1186/s41687-025-00987-x
Ballinger, TJ, Zhao, F, Jiang, G, Shen, F, Cella, D, Peipert, JD, Miller, KD, Wolff, AC, DeMichele, AM, Schneider, BP & Wagner, LI 2026, 'Impact of patient‐reported taxane‐induced peripheral neuropathy on dose reductions or worsening quality of life in Black women with breast cancer: Analysis from ECOG‐ACRIN EAZ171', Cancer, vol. 132, no. 11, e70466. https://doi.org/10.1002/cncr.70466
Alger, E, Aiyegbusi, OL, Dueck, AC, Minchom, A, Pe, M, Peipert, JD, Snyder, C, Symeonides, SN, Wilson, R, Basch, E, Qiao, Y, Bates, SE, Bulbeck, H, Dean, L, Di Maio, M, Hansen, AR, Kholmanskikh, O, Kobayashi, K, Landers, D, Tourneau, CL, Lee, JJ, Ma, BBY, Marshall, LV, Patel, S, Petrie, J, Pond, GR, Prior, K, Rantell, KR, Reeve, JF, Solovyeva, O, Wages, NA, Weber, HA, Calvert, MJ & Yap, C 2026, 'International Consensus-Driven Recommendations for Patient-Reported Outcome Research Objectives in Early Phase Dose-Finding Oncology Trials: OPTIMISE-ROR', Journal of Clinical Oncology . https://doi.org/10.1200/JCO-25-01625
Roydhouse, J, Breslin, M, Zola, A, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, JD 2026, 'Patient-Perceived Overall Side Effect Bother at and After Cancer Treatment Discontinuation: An Analysis Using Commercial Cancer Trial Data', Therapeutic Innovation & Regulatory Science. https://doi.org/10.1007/s43441-025-00906-8
Flume, PA, Nordyke, RJ, Han, D, Jha, A, Nicholson, G & Peipert, JD 2026, 'Patient-reported outcome measures developed for non–cystic fibrosis bronchiectasis may be applied to cystic fibrosis bronchiectasis', Health and Quality of Life Outcomes, vol. 24, no. 1, 74. https://doi.org/10.1186/s12955-026-02546-4
Langlais, B, Noble, B, Fruth, B, Truman, M, Mazza, GL, Ginos, B, Mead-Harvey, C, Lee, M, Yee, C, Rogak, L, Meek, E, Deal, AM, Peipert, JD, Thanarajasingam, G, Basch, E & Dueck, AC 2026, 'ProAE: an R package for graphical tools and standardized analysis of patient-reported outcomes and adverse events data', BMC Medical Informatics and Decision Making, vol. 26, no. 1, 26. https://doi.org/10.1186/s12911-025-03320-0
Aiyegbusi, OL, McCorry, NK, Calvert, MJ, Peipert, JD, Cruz Rivera, S, Muni-Lofra, R, Alexis, S, Awan, F, Bailey, T, Billingham, L, Callaghan, R, Collins, C, Currie, BM, Dixon, M, Duddridge, M, Ennis, J, Fred, L, Greenwell, S, Griffiths, C, Hareendran, A, Illoh, OA, Leeson-Beevers, K, Letchemanan, K, Lister, SP, McCabe, C, McFatrich, M, McKnight, AJ, McLaughlin, F, Moldovan, R, Murray, LT, O'Connor, DJ, Oko-osi, H, Oni, L, Pritchard, KM, Rantell, KR, Straub, V, Barrett, TG & LifeArc Accelerating Rare Disease Trials (ARDT) centre 2026, 'Recommendations for the use of clinical outcome assessments in rare disease drug development', EClinicalMedicine, vol. 98, 104073. https://doi.org/10.1016/j.eclinm.2026.104073
Hughes, S, Hughes, BMA, Haroon, S, Hathaway, E, Anderson, N, McMullan, C, Newnham, M, Taylor, C, Denniston, A, Backhouse, S, Filer, A, Raza, K, Scarisbrick, J, Anderson, C, Lee, M, Watts, L, Hodgetts-Morton, V, Hillman, S, Mughal, F, Day, E, Sami, T, Jesani, A, Jackson, T, Collis, P, Peipert, JD & Calvert, M 2026, 'Symptom burden in multiple long-term conditions: an AI-supported, mixed-methods concept elicitation study', Journal of the Royal Society of Medicine, vol. 17, no. 7, 20542704261459717. https://doi.org/10.1177/20542704261459717
Shaw, KL, Hughes, SE, Aiyegbusi, OL, Ansell, J, Chakera, E, Chakraverty, R, Chatterley, M, Ferguson, P, Khatsuria, F, Lloyd, R, McMullan, C, Peipert, JD, Pyatt, L, Yarosh, V & Calvert, MJ 2026, 'The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement', Journal of Patient-Reported Outcomes, vol. 10, 70. https://doi.org/10.1186/s41687-026-01036-x
Abstract
Callegari, MA, Chen, K, Kasperek, J, Peipert, D & Dietch, Z 2026, 'Patient Reported Outcomes Can Be an Effective Tool to Predict Hospitalizations for Liver Transplant Recipients', American Journal of Transplantation, vol. 26, no. 7, Supplement 1, A241, pp. S489-S489. https://doi.org/10.1016/j.ajt.2026.05.971
Hashemi, L, Howedel, T, Weatherby, S, Clayton, S, Lowe, M, Fowler, K, Taber, D & Peipert, D 2026, 'Physician-Patient Discordance in Symptom Reporting Post-Kidney Transplant: Evidence from a Real-World Survey', American Journal of Transplantation, vol. 26, no. 7, C79, pp. S754-S754. https://doi.org/10.1016/j.ajt.2026.05.1591
Comment/debate
Byrom, B & Peipert, JD 2026, 'Patient-Reported Outcomes to Inform Tolerability Characterization in Cancer Trials: A Critical Perspective on Unresolved Methodological Issues', Cancer Control, vol. 33, 10732748261432279. https://doi.org/10.1177/10732748261432279
Review article
Rylands, AJ, Maruszczyk, K, Aiyegbusi, OL, Bouslouk-Marx, M, Collis, P, Illoh, O, Keeley, T, King-Kallimanis, BL, Martin, A, Mazza, GL, McMullan, C, Molsen-David, E, O’Connor, D, Peipert, JD, Roydhouse, J, Snyder, C, Yelland, E & Calvert, MJ 2026, 'Designing and Implementing Real-World Patient-Reported Outcomes—Emerging Recommendations: A Good Practices Report of an ISPOR Task Force', Value in Health, vol. 29, no. 6, pp. 921-931. https://doi.org/10.1016/j.jval.2026.02.018
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