Recent publications
Article
Roydhouse, J, Zola, A, Breslin, M, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, D 2026, 'A Single Item for Overall Side Effect Impact: Association with Clinician-Reported Adverse Events and Global Health', Clinical Trials. https://doi.org/10.1177/17407745251405412
Hurt, CN, Kuharic, M, Shaunfield, S, Beck, J, Bastian, A, Fowler, K, Jaeger, E, May, M, van den Berg, E, Friedewald, J & Peipert, JD 2026, 'Development of a conceptual model of BKV impacts on health-related quality of life in kidney transplant recipients: a qualitative study', Journal of Patient-Reported Outcomes, vol. 10, no. 1, 4. https://doi.org/10.1186/s41687-025-00987-x
Alger, E, Aiyegbusi, OL, Dueck, AC, Minchom, A, Pe, M, Peipert, JD, Snyder, C, Symeonides, SN, Wilson, R, Basch, E, Qiao, Y, Bates, SE, Bulbeck, H, Dean, L, Di Maio, M, Hansen, AR, Kholmanskikh, O, Kobayashi, K, Landers, D, Tourneau, CL, Lee, JJ, Ma, BBY, Marshall, LV, Patel, S, Petrie, J, Pond, GR, Prior, K, Rantell, KR, Reeve, JF, Solovyeva, O, Wages, NA, Weber, HA, Calvert, MJ & Yap, C 2026, 'International Consensus-Driven Recommendations for Patient-Reported Outcome Research Objectives in Early Phase Dose-Finding Oncology Trials: OPTIMISE-ROR', Journal of Clinical Oncology . https://doi.org/10.1200/JCO-25-01625
Roydhouse, J, Breslin, M, Zola, A, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, JD 2026, 'Patient-Perceived Overall Side Effect Bother at and After Cancer Treatment Discontinuation: An Analysis Using Commercial Cancer Trial Data', Therapeutic Innovation & Regulatory Science. https://doi.org/10.1007/s43441-025-00906-8
Langlais, B, Noble, B, Fruth, B, Truman, M, Mazza, GL, Ginos, B, Mead-Harvey, C, Lee, M, Yee, C, Rogak, L, Meek, E, Deal, AM, Peipert, JD, Thanarajasingam, G, Basch, E & Dueck, AC 2026, 'ProAE: an R package for graphical tools and standardized analysis of patient-reported outcomes and adverse events data', BMC Medical Informatics and Decision Making, vol. 26, no. 1, 26. https://doi.org/10.1186/s12911-025-03320-0
Kuharic, M, Hurt, CN, Greene, GJ, Ruderman, E, Lee, YC, Mandelin, AM, Cella, D & Peipert, JD 2025, 'A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study', Clinical and Experimental Rheumatology, vol. 43, no. 9, pp. 1593-1603. https://doi.org/10.55563/clinexprheumatol/7ecam5
Retzer, A, Al-Jilaihawi, S, Bailey, S, Buenger, V, Damery, S, Darlington, AS, Diezi, M, Peipert, JD, Roydhouse, J & Reeve, BB 2025, 'Assessing patient-reported outcomes (PROs) in paediatric oncology research: Which PRO would a pro pick, if a pro was picking PROs?', EJC Paediatric Oncology, vol. 5, 100232. https://doi.org/10.1016/j.ejcped.2025.100232
Pucci, MG, Ayibiowu, M, Fadlallah, J, Wasim, A, Edwards, N, Li, M, Howell, D, Bartlett, S, Peipert, JD, Anthony, S, Mucsi, I & Farragher, J 2025, 'Assessing Social Participation Among Kidney Transplant Recipients Using PROMIS Computer Adaptive Testing', Kidney International Reports, vol. 10, no. 8, pp. 2708-2719. https://doi.org/10.1016/j.ekir.2025.05.023
Hwu, W-L, Lee, H-M, Peipert, D, Zhang, R, Werner, C, Sierra, JR, O’Connell, T, Woolley, JJ, Crowell, M, Wang, A & Tomazos, I 2025, 'Clinically meaningful improvements after gene therapy for aromatic L-amino acid decarboxylase deficiency (AADCd) in the Peabody Developmental Motor Scale, Second Edition (PDMS-2) and correlation with Bayley-III scores and motor milestones', Orphanet Journal of Rare Diseases, vol. 20, no. 1, 58. https://doi.org/10.1186/s13023-025-03584-9
Consensus group, Gagnier, JJ, Tavares de Arruda, G, Terwee, CB, Mokkink, LB & Peipert, D 2025, 'COSMIN reporting guideline for studies on measurement properties of patient‑reported outcome measures: version 2.0', Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, vol. 34, pp. 1901–1911. https://doi.org/10.1007/s11136-025-03950-x
Hurt, CN, Greene, GJ, Friedewald, J, Waterman, AD, Ladner, D, Tang, X, Fowler, K, Kaiser, K, Cella, D & Peipert, JD 2025, 'Development of a Patient-Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx', American Journal of Kidney Diseases, vol. 85, no. 6, pp. 704-715.e1. https://doi.org/10.1053/j.ajkd.2024.11.012
Wenzel, L, McKinney, C, Jensen, S, Peipert, D, Ganatra, S, Bredle, J, Sisodia, R, Doll, KM, Philp, L, Arend, R, Dholakia, J & Cella, D 2025, 'Ensuring relevance and equity in patient reported outcomes (PROs) in endometrial cancer: The SGO promote study (Patient Reported Outcomes Measurement Opportunities Through Equity)', Gynecologic oncology, vol. 194, pp. 137-144. https://doi.org/10.1016/j.ygyno.2025.02.020
PROM Reporting Group, de Arruda, GT, Terwee, CB, Elsman, EBM, Avila, MA, Gagnier, JJ & Mokkink, LB 2025, 'Explanation & Elaboration document of the COSMIN Reporting Guideline 2.0 for studies on measurement properties of patient-reported outcome measures', Quality of Life Research, vol. 34, no. 7, pp. 1891-1899. https://doi.org/10.1007/s11136-025-03949-4
Abstract
Alger, E, Aiyegbusi, OL, Dueck , A, Minchom, AR, Pe, M, Peipert, JD, Symeonides, SN, Snyder, C, Wilson, R, Basch, E, Calvert, M & Yap, C 2025, '87O International consensus-driven recommendations for patient-reported outcome research objectives in early phase dose-finding oncology clinical trials: OPTIMISE-ROR', ESMO Open, vol. 10, no. Supplement 6, 105438. https://doi.org/10.1016/j.esmoop.2025.105438
Marblestone, N, Fadlallah, J, Ayibiowu, M, Hajjar, W, Joron, H, Bartlett, SJ, Howell, D, Li, M, Peipert, J, Farragher, J & Mucsi, I 2025, 'Depression Symptom Severity is Associated with Social Participation Among Kidney Transplant Recipients', American Journal of Transplantation, vol. 25, no. 8, Supplement 1, pp. S627-S627. https://doi.org/10.1016/j.ajt.2025.07.1460
View all publications in research portal