Recent publications
Article
Roydhouse, J, Zola, A, Breslin, M, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, D 2026, 'A Single Item for Overall Side Effect Impact: Association with Clinician-Reported Adverse Events and Global Health', Clinical Trials. https://doi.org/10.1177/17407745251405412
Hurt, CN, Kuharic, M, Shaunfield, S, Beck, J, Bastian, A, Fowler, K, Jaeger, E, May, M, van den Berg, E, Friedewald, J & Peipert, JD 2026, 'Development of a conceptual model of BKV impacts on health-related quality of life in kidney transplant recipients: a qualitative study', Journal of Patient-Reported Outcomes, vol. 10, no. 1, 4. https://doi.org/10.1186/s41687-025-00987-x
Alger, E, Aiyegbusi, OL, Dueck, AC, Minchom, A, Pe, M, Peipert, JD, Snyder, C, Symeonides, SN, Wilson, R, Basch, E, Qiao, Y, Bates, SE, Bulbeck, H, Dean, L, Di Maio, M, Hansen, AR, Kholmanskikh, O, Kobayashi, K, Landers, D, Tourneau, CL, Lee, JJ, Ma, BBY, Marshall, LV, Patel, S, Petrie, J, Pond, GR, Prior, K, Rantell, KR, Reeve, JF, Solovyeva, O, Wages, NA, Weber, HA, Calvert, MJ & Yap, C 2026, 'International Consensus-Driven Recommendations for Patient-Reported Outcome Research Objectives in Early Phase Dose-Finding Oncology Trials: OPTIMISE-ROR', Journal of Clinical Oncology . https://doi.org/10.1200/JCO-25-01625
Roydhouse, J, Breslin, M, Zola, A, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, JD 2026, 'Patient-Perceived Overall Side Effect Bother at and After Cancer Treatment Discontinuation: An Analysis Using Commercial Cancer Trial Data', Therapeutic Innovation & Regulatory Science. https://doi.org/10.1007/s43441-025-00906-8
Langlais, B, Noble, B, Fruth, B, Truman, M, Mazza, GL, Ginos, B, Mead-Harvey, C, Lee, M, Yee, C, Rogak, L, Meek, E, Deal, AM, Peipert, JD, Thanarajasingam, G, Basch, E & Dueck, AC 2026, 'ProAE: an R package for graphical tools and standardized analysis of patient-reported outcomes and adverse events data', BMC Medical Informatics and Decision Making, vol. 26, no. 1, 26. https://doi.org/10.1186/s12911-025-03320-0
Hughes, S, Hughes, BMA, Haroon, S, Hathaway, E, Anderson, N, McMullan, C, Newnham, M, Taylor, C, Denniston, A, Backhouse, S, Filer, A, Raza, K, Scarisbrick, J, Anderson, C, Lee, M, Watts, L, Hodgetts-Morton, V, Hillman, S, Mughal, F, Day, E, Sami, T, Jesani, A, Jackson, T, Collis, P, Peipert, JD & Calvert, M 2026, 'Symptom burden in multiple long-term conditions: an AI-supported, mixed-methods concept elicitation study', Journal of the Royal Society of Medicine.
Shaw, KL, Hughes, SE, Aiyegbusi, OL, Ansell, J, Chakera, E, Chakraverty, R, Chatterley, M, Ferguson, P, Khatsuria, F, Lloyd, R, McMullan, C, Peipert, JD, Pyatt, L, Yarosh, V & Calvert, MJ 2026, 'The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement', Journal of Patient-Reported Outcomes, vol. 10, 70. https://doi.org/10.1186/s41687-026-01036-x
Kuharic, M, Hurt, CN, Greene, GJ, Ruderman, E, Lee, YC, Mandelin, AM, Cella, D & Peipert, JD 2025, 'A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study', Clinical and Experimental Rheumatology, vol. 43, no. 9, pp. 1593-1603. https://doi.org/10.55563/clinexprheumatol/7ecam5
Retzer, A, Al-Jilaihawi, S, Bailey, S, Buenger, V, Damery, S, Darlington, AS, Diezi, M, Peipert, JD, Roydhouse, J & Reeve, BB 2025, 'Assessing patient-reported outcomes (PROs) in paediatric oncology research: Which PRO would a pro pick, if a pro was picking PROs?', EJC Paediatric Oncology, vol. 5, 100232. https://doi.org/10.1016/j.ejcped.2025.100232
Pucci, MG, Ayibiowu, M, Fadlallah, J, Wasim, A, Edwards, N, Li, M, Howell, D, Bartlett, S, Peipert, JD, Anthony, S, Mucsi, I & Farragher, J 2025, 'Assessing Social Participation Among Kidney Transplant Recipients Using PROMIS Computer Adaptive Testing', Kidney International Reports, vol. 10, no. 8, pp. 2708-2719. https://doi.org/10.1016/j.ekir.2025.05.023
Hwu, W-L, Lee, H-M, Peipert, D, Zhang, R, Werner, C, Sierra, JR, O’Connell, T, Woolley, JJ, Crowell, M, Wang, A & Tomazos, I 2025, 'Clinically meaningful improvements after gene therapy for aromatic L-amino acid decarboxylase deficiency (AADCd) in the Peabody Developmental Motor Scale, Second Edition (PDMS-2) and correlation with Bayley-III scores and motor milestones', Orphanet Journal of Rare Diseases, vol. 20, no. 1, 58. https://doi.org/10.1186/s13023-025-03584-9
Consensus group, Gagnier, JJ, Tavares de Arruda, G, Terwee, CB, Mokkink, LB & Peipert, D 2025, 'COSMIN reporting guideline for studies on measurement properties of patient‑reported outcome measures: version 2.0', Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, vol. 34, pp. 1901–1911. https://doi.org/10.1007/s11136-025-03950-x
Abstract
Alger, E, Aiyegbusi, OL, Dueck , A, Minchom, AR, Pe, M, Peipert, JD, Symeonides, SN, Snyder, C, Wilson, R, Basch, E, Calvert, M & Yap, C 2025, '87O International consensus-driven recommendations for patient-reported outcome research objectives in early phase dose-finding oncology clinical trials: OPTIMISE-ROR', ESMO Open, vol. 10, no. Supplement 6, 105438. https://doi.org/10.1016/j.esmoop.2025.105438
Comment/debate
Byrom, B & Peipert, JD 2026, 'Patient-Reported Outcomes to Inform Tolerability Characterization in Cancer Trials: A Critical Perspective on Unresolved Methodological Issues', Cancer Control, vol. 33, 10732748261432279. https://doi.org/10.1177/10732748261432279
Review article
Rylands, AJ, Maruszczyk, K, Aiyegbusi, OL, Bouslouk-Marx, M, Collis, P, Illoh, O, Keeley, T, King-Kallimanis, BL, Martin, A, Mazza, GL, McMullan, C, Molsen-David, E, O’Connor, D, Peipert, JD, Roydhouse, J, Snyder, C, Yelland, E & Calvert, MJ 2026, 'Designing and Implementing Real-World Patient-Reported Outcomes—Emerging Recommendations: A Good Practices Report of an ISPOR Task Force', Value in Health. https://doi.org/10.1016/j.jval.2026.02.018
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