Recent publications
Article
Kuharic, M, Hurt, CN, Greene, GJ, Ruderman, E, Lee, YC, Mandelin, AM, Cella, D & Peipert, JD 2025, 'A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study', Clinical and Experimental Rheumatology, vol. 43, no. 9, pp. 1593-1603. https://doi.org/10.55563/clinexprheumatol/7ecam5
Retzer, A, Al-Jilaihawi, S, Bailey, S, Buenger, V, Damery, S, Darlington, AS, Diezi, M, Peipert, JD, Roydhouse, J & Reeve, BB 2025, 'Assessing patient-reported outcomes (PROs) in paediatric oncology research: Which PRO would a pro pick, if a pro was picking PROs?', EJC Paediatric Oncology, vol. 5, 100232. https://doi.org/10.1016/j.ejcped.2025.100232
Pucci, MG, Ayibiowu, M, Fadlallah, J, Wasim, A, Edwards, N, Li, M, Howell, D, Bartlett, S, Peipert, JD, Anthony, S, Mucsi, I & Farragher, J 2025, 'Assessing Social Participation Among Kidney Transplant Recipients Using PROMIS Computer Adaptive Testing', Kidney International Reports, vol. 10, no. 8, pp. 2708-2719. https://doi.org/10.1016/j.ekir.2025.05.023
Hwu, W-L, Lee, H-M, Peipert, D, Zhang, R, Werner, C, Sierra, JR, O’Connell, T, Woolley, JJ, Crowell, M, Wang, A & Tomazos, I 2025, 'Clinically meaningful improvements after gene therapy for aromatic L-amino acid decarboxylase deficiency (AADCd) in the Peabody Developmental Motor Scale, Second Edition (PDMS-2) and correlation with Bayley-III scores and motor milestones', Orphanet Journal of Rare Diseases, vol. 20, no. 1, 58. https://doi.org/10.1186/s13023-025-03584-9
Consensus group, Gagnier, JJ, Tavares de Arruda, G, Terwee, CB, Mokkink, LB & Peipert, D 2025, 'COSMIN reporting guideline for studies on measurement properties of patient‑reported outcome measures: version 2.0', Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, vol. 34, pp. 1901–1911. https://doi.org/10.1007/s11136-025-03950-x
Hurt, CN, Greene, GJ, Friedewald, J, Waterman, AD, Ladner, D, Tang, X, Fowler, K, Kaiser, K, Cella, D & Peipert, JD 2025, 'Development of a Patient-Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx', American Journal of Kidney Diseases, vol. 85, no. 6, pp. 704-715.e1. https://doi.org/10.1053/j.ajkd.2024.11.012
Wenzel, L, McKinney, C, Jensen, S, Peipert, D, Ganatra, S, Bredle, J, Sisodia, R, Doll, KM, Philp, L, Arend, R, Dholakia, J & Cella, D 2025, 'Ensuring relevance and equity in patient reported outcomes (PROs) in endometrial cancer: The SGO promote study (Patient Reported Outcomes Measurement Opportunities Through Equity)', Gynecologic oncology, vol. 194, pp. 137-144. https://doi.org/10.1016/j.ygyno.2025.02.020
PROM Reporting Group, de Arruda, GT, Terwee, CB, Elsman, EBM, Avila, MA, Gagnier, JJ & Mokkink, LB 2025, 'Explanation & Elaboration document of the COSMIN Reporting Guideline 2.0 for studies on measurement properties of patient-reported outcome measures', Quality of Life Research, vol. 34, no. 7, pp. 1891-1899. https://doi.org/10.1007/s11136-025-03949-4
Perry, LM, Mohindra, NA, Coughlin, A, Bedjeti, K, Barnard, C, Garcia, SF, Peipert, D, Kircher, SM, Aggarwal, V, Linder, J, Weitzel, M, Morken, V, Patten, E, Torres, J, O'Connor, M, Metzger, S, O'Daniel, A, Chmiel, R, Modi, R, Munroe, M, Xinos, S, Elwyn, G, Nelson, E, Van Citters, A, Cella, D & Hirschhorn, L 2025, 'Implementation of patient-reported outcome dashboards within the electronic health record to support shared decision-making in serious chronic illness', BMJ open quality, vol. 14, no. 1, e002837. https://doi.org/10.1136/bmjoq-2024-002837
Alger, E, Aiyegbusi, OL, Dueck, AC, Minchom, A, Pe, M, Peipert, JD, Snyder, C, Symeonides, SN, Wilson, R, Basch, E, Qiao, Y, Bates, SE, Bulbeck, H, Dean, L, Di Maio, M, Hansen, AR, Kholmanskikh, O, Kobayashi, K, Landers, D, Tourneau, CL, Lee, JJ, Ma, BBY, Marshall, LV, Patel, S, Petrie, J, Pond, GR, Prior, K, Rantell, KR, Reeve, JF, Solovyeva, O, Wages, NA, Weber, HA, Calvert, MJ & Yap, C 2025, 'International consensus-driven recommendations for patient-reported outcome research objectives in early phase dose-finding oncology trials: OPTIMISE-ROR', Journal of Clinical Oncology .
Tang, X, Lai, J-S, Kang, SK & Peipert, JD 2025, 'Meaningful changes in physical function and pain in patients with knee osteoarthritis', Journal of Patient-Reported Outcomes, vol. 9, no. 1, 112. https://doi.org/10.1186/s41687-025-00941-x
Peipert, JD, Ganatra, S, Zhao, F, Lee, JW, Roydhouse, J, Ip, EH, O’Connell, N, Carlos, RC, Graham, N, Smith, ML, Gareen, IF, Tarhini, AA, Shanafelt, T, Stearns, V, Raper, PJ, Cella, D, Gray, R & Wagner, LI 2025, 'Overall side‐effect bother consistently associated with early treatment discontinuation due to adverse events in four clinical trials with various cancer types and treatments', Cancer, vol. 131, no. S2, e70084. https://doi.org/10.1002/cncr.70084
Chapter
Peipert, D, Calvert, M & Aiyegbusi, OL 2025, Patient-centric treatment tolerability: Past, present and future. in M Reaney (ed.), Patient-centricity in the Biopharmaceutical Industry: Are We Nearly There Yet? A collection of perspectives from researchers, approvers and patients. IQVIA, pp. 62-69. <https://secure.constellation.iqvia.com/PCbook>
Abstract
Alger, E, Aiyegbusi, OL, Dueck , A, Minchom, AR, Pe, M, Peipert, D, Symeonides, SN, Snyder, C, Wilson, R, Basch, E, Calvert, M & Yap, C 2025, '87O International consensus-driven recommendations for patient-reported outcome research objectives in early phase dose-finding oncology clinical trials: OPTIMISE-ROR', ESMO Open, vol. 10, no. Supplement 6, 105438. https://doi.org/10.1016/j.esmoop.2025.105438
Marblestone, N, Fadlallah, J, Ayibiowu, M, Hajjar, W, Joron, H, Bartlett, SJ, Howell, D, Li, M, Peipert, J, Farragher, J & Mucsi, I 2025, 'Depression Symptom Severity is Associated with Social Participation Among Kidney Transplant Recipients', American Journal of Transplantation, vol. 25, no. 8, Supplement 1, pp. S627-S627. https://doi.org/10.1016/j.ajt.2025.07.1460
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