Recent publications
Article
Thomas, L, Preston, J, Hardwick, H, Peipert, JD & Oni, L 2026, 'A framework to amplify the voices of underrepresented children and young people in rare disease research', Journal of Patient-Reported Outcomes, vol. 10, no. 1, 75. https://doi.org/10.1186/s41687-026-01056-7
Oni, L, Smith, R, Ozen, S, Williams, C, Davies, E, King, C, Brogan, P, Haas, M, Barratt, J, Hafkin, J, Eleftheriou, D, Keat, K, Smith, EMD, Ding, W, Cheung, C, Platt, C, Pillebout, E, Chetwynd, A, Alladin, A, Vaglio, A, Jones, C, Pain, C, Sunderkötter, C, Peipert, J, Barnes, E, Trivioli, G, Hardwick, H, Morgan, H, Bajema, I, Wason, J, Wade, J, Sanchez-Manubens, J, Vernon, K, Willcocks, L, Harper, L, Lindsay, L, Beldie, MA, Marlais, M, O'Shaughnessy, M, Gkargkoula, P, Hamilton, P, Bakry, R, Bogos, R, Demir, S, Brix, S, Appenzeller, S, Bansal, T, Anastasa, Z, Marks, SD, Audemard-Verger, A, Renson, T, Jelusic, M, Jayne, D & Salama, A 2026, 'A Pathway to High Quality Clinical Trials in IgA Vasculitis Nephritis: Meeting Proceedings From a Multiprofessional International Collaborative Workshop', Kidney International Reports, vol. 11, no. 3, 103729. https://doi.org/10.1016/j.ekir.2025.103729
Roydhouse, J, Zola, A, Breslin, M, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, D 2026, 'A Single Item for Overall Side Effect Impact: Association with Clinician-Reported Adverse Events and Global Health', Clinical Trials. https://doi.org/10.1177/17407745251405412
Peipert, JD, Kuharic, M, Carlozzi, NE, Hurt, CN, Rahimi, AE, Lai, JS, Raghunathan, T, Hashemi, S, Trachtman, H, Oni, L, Scherr, R, Zhai, Y & Salmon, E 2026, 'Clinical Outcome Assessment Endpoints in Nephrotic Syndrome Drug Development: Research Partner Feedback on Patient-Centered Trial Design', Glomerular diseases, vol. 6, no. 1, pp. 103-112. https://doi.org/10.1159/000550524
Hurt, CN, Kuharic, M, Shaunfield, S, Beck, J, Bastian, A, Fowler, K, Jaeger, E, May, M, van den Berg, E, Friedewald, J & Peipert, JD 2026, 'Development of a conceptual model of BKV impacts on health-related quality of life in kidney transplant recipients: a qualitative study', Journal of Patient-Reported Outcomes, vol. 10, no. 1, 4. https://doi.org/10.1186/s41687-025-00987-x
Fadlallah, J, Hays, RD, Jahan, S, Edwards, N, Cochrane, S, Lee, JG, Li, M, Howell, D, Peipert, JD, Bartlett, SJ & Mucsi, I 2026, 'Health-related quality of life in kidney transplant recipients: association with graft function and comparison to patients on dialysis', Quality of Life Research, vol. 35, no. 1, 6. https://doi.org/10.1007/s11136-025-04138-z
Hurt, C, Kuharic, M, Hashemi, S, Salmon, E, Eremenco, S, Cella, D, Kaiser, K, Perschon, C, Shaunfield, S & Peipert, JD 2026, 'How Much Change Is Meaningful in Global Impression Anchors? Evidence From 5 Rare Diseases', Value in Health, vol. 29, no. 10, pp. 1769-1780. https://doi.org/10.1016/j.jval.2026.04.012
Ballinger, TJ, Zhao, F, Jiang, G, Shen, F, Cella, D, Peipert, JD, Miller, KD, Wolff, AC, DeMichele, AM, Schneider, BP & Wagner, LI 2026, 'Impact of patient‐reported taxane‐induced peripheral neuropathy on dose reductions or worsening quality of life in Black women with breast cancer: Analysis from ECOG‐ACRIN EAZ171', Cancer, vol. 132, no. 11, e70466. https://doi.org/10.1002/cncr.70466
Alger, E, Aiyegbusi, OL, Dueck, AC, Minchom, A, Pe, M, Peipert, JD, Snyder, C, Symeonides, SN, Wilson, R, Basch, E, Qiao, Y, Bates, SE, Bulbeck, H, Dean, L, Di Maio, M, Hansen, AR, Kholmanskikh, O, Kobayashi, K, Landers, D, Tourneau, CL, Lee, JJ, Ma, BBY, Marshall, LV, Patel, S, Petrie, J, Pond, GR, Prior, K, Rantell, KR, Reeve, JF, Solovyeva, O, Wages, NA, Weber, HA, Calvert, MJ & Yap, C 2026, 'International Consensus-Driven Recommendations for Patient-Reported Outcome Research Objectives in Early Phase Dose-Finding Oncology Trials: OPTIMISE-ROR', Journal of Clinical Oncology . https://doi.org/10.1200/JCO-25-01625
Kuharic, M, Webster, KA, Zola, AR, Corona, ME, Patten, EA, Karmali, R, Gordon, L, Ma, S, Peipert, JD & Cella, D 2026, 'Measuring group‑ and individual‑level change of FACIT-fatigue, NFLymSI-18 and PROMIS fatigue measures (4a, 7a and 13a) in lymphoma', Journal of Patient-Reported Outcomes, vol. 10, no. 1, 191. https://doi.org/10.1186/s41687-026-01154-6
Peipert, JD, Oni, L, Aiyegbusi, OL, Anderson, N, Calvert, M, Damashek, L, Thomas, L, Trachtman, H & Salmon, E 2026, 'Patient-Focused Drug Development in Kidney Disease: Including Fit-for-Purpose Outcomes in Trials', Journal of the American Society of Nephrology, vol. 37, no. 3, pp. 610-612. https://doi.org/10.1681/ASN.0000000981
Roydhouse, J, Breslin, M, Zola, A, Basch, E, Calvert, M, Cella, D, Smith, ML, Thanarajasingam, G & Peipert, JD 2026, 'Patient-Perceived Overall Side Effect Bother at and After Cancer Treatment Discontinuation: An Analysis Using Commercial Cancer Trial Data', Therapeutic Innovation & Regulatory Science. https://doi.org/10.1007/s43441-025-00906-8
Flume, PA, Nordyke, RJ, Han, D, Jha, A, Nicholson, G & Peipert, JD 2026, 'Patient-reported outcome measures developed for non–cystic fibrosis bronchiectasis may be applied to cystic fibrosis bronchiectasis', Health and Quality of Life Outcomes, vol. 24, no. 1, 74. https://doi.org/10.1186/s12955-026-02546-4
Abstract
Callegari, MA, Chen, K, Kasperek, J, Peipert, D & Dietch, Z 2026, 'Patient Reported Outcomes Can Be an Effective Tool to Predict Hospitalizations for Liver Transplant Recipients', American Journal of Transplantation, vol. 26, no. 7, Supplement 1, A241, pp. S489-S489. https://doi.org/10.1016/j.ajt.2026.05.971
Review article
Rylands, AJ, Maruszczyk, K, Aiyegbusi, OL, Bouslouk-Marx, M, Collis, P, Illoh, O, Keeley, T, King-Kallimanis, BL, Martin, A, Mazza, GL, McMullan, C, Molsen-David, E, O’Connor, D, Peipert, JD, Roydhouse, J, Snyder, C, Yelland, E & Calvert, MJ 2026, 'Designing and Implementing Real-World Patient-Reported Outcomes—Emerging Recommendations: A Good Practices Report of an ISPOR Task Force', Value in Health, vol. 29, no. 6, pp. 921-931. https://doi.org/10.1016/j.jval.2026.02.018
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