Professor Anne-Marie Russell PhD MSc PGCE BSc(hons) APRN RHV LPE

Professor Anne-Marie Russell

School of Nursing and Midwifery
Jenny Jones Chair of Nursing Science
School Head of Research

Contact details

Institute of Clinical Sciences
University of Birmingham
B15 2TT

Dr Russell holds the Jenny Jones Chair of Nursing Science and is head of research and knowledge transfer. She has research expertise in mixed methods and person-centred approaches in Interstitial Lung Disease (ILD). She maintains a portfolio of contemporary practice in research, research leadership, clinical practice, and education.

Dr Russell is committed to developing the next generation of clinical academics and researchers and offers mentorship and research supervision.


  • American Thoracic Society Fellow 2020 School
  • PhD Respiratory Medicine | Imperial College London
  • MSc Advanced Practice & Research Methods (distinction) | University of Huddersfield
  • PGCE (distinction) | University of Huddersfield
  • BSc (hons) Public Health (2:1) | Brunel University
  • BSc (hons) Professional Studies & Research Methods (2:1) | University West London
  • PgCert Family Therapy & Systemic Practice | University of Leeds
  • Diploma Tropical Diseases & Laboratory Techniques | London School of Hygiene & Tropical Medicine


Anne-Marie completed her PhD and post-doctoral research in respiratory medicine at the National Heart and Lung Institute Imperial College, London honing specialist knowledge of interstitial lung disease (ILD). Her research began extensively in the field of progressive pulmonary fibrosis, specifically IPF and focused on patient reported measures. Anne-Marie has established clinical research collaborations including rheumatologists working in the field of CTD-ILD and scleroderma. Through the COVID-19 pandemic she co-led an international study capturing patients’ experiences of living with Sarcoidosis, a multi-system disorder leading to further work and publications in this field. Her research is consistently patient centred, working with patients as partners from conception to outputs.

Anne Marie is an active member of the European Respiratory Society, engaged in task force work developing international clinical guidelines. In her UK regional leadership roles as a NIHR70&70 senior research leader and more recently as the WE-NIHR CRN research lead she supported research capability and capacity for nursing and allied healthcare professions. Anne Marie remains committed to mentoring the next generation of clinical academics and continues to work closely with the NIHR Nursing & Midwifery Office.


Postgraduate supervision

Professor Russell offers pre doctoral, doctoral and post-doctoral supervision.

Current projects include:

  • The Assessment Treatment of Breathing Pattern Dysfunction
  • Living beyond a diagnosis of Idiopathic Pulmonary Fibrosis: A mixed method exploration of patient related experience and unmet health care needs
  • Remote Monitoring of Patients with Chronic Lung Disease Including IPF
  • Patient & caregiver shared experiences of pulmonary fibrosis
  • Understanding the healthcare needs of people living with Human T-cell-Lymphotrophic-Virus-type1 (HTLV-1)
  • Investigation of the patient experience of home spirometry programme in ILD


Research interests

  • Interstitial Lung Diseases (ILDs)
  • supported self-management (home monitoring)
  • mixed methods
  • person-centred approaches
  • patient reported measures
  • systematic reviews

Current Research

A multi-centre double-blind randomised placebo-controlled group-sequential superiority trial to assess the effectiveness and cost-effectiveness of oral Corticosteroids in patients witH fibrotic hypeRsensitivity pneUmonitiS (CHORUS).

NIHR Health Technology Assessment (HTA)

Dual SiteRespiratory remote monitoring programme for patients with ILD in Southern England. NHSx Digital Health Partnership Award

Identifying research priorities for progressive pulmonary fibrosis in the United Kingdom

Joseph Lind Alliance Progressive Pulmonary Fibrosis Priority Setting Partnership

Other activities



-          ILD-IN 2023 Innovation in Digital Technology Award

-          American Thoracic Society Fellow 2020 School – award for service and research endeavour

-          NIHR Infrastructure Doctoral Research Training Residential programme: The Art of Communication | Leeds. NHLI nominee: July 2017.

-          American Thoracic Society Abstract Scholarship Awards International Conference 2017/18


-          University of Exeter NIHR Biomedical Research Centre £15m awarded Dec 2022

Co-applicant supporting the mycology theme and development of a respiratory shadow theme

-          University of Exeter and Royal Devon University Hospitals NHS Trust Sept 2022 £20k developmental award

Co-applicant and co-lead Clinical Academic Unit


Above and beyond award for delivering a new PgCert University of Exeter 2023


European IPF Preceptorship Residential Programme Thoraxklinik, Heidelberg. UK nominee 2015. 

Patient & Public Involvement:

Irish Healthcare Awards 2019 Patient Organisation Project of the Year.

-          Commendation for World Café on Palliative Care and Planning for the Future.

Alumni: NIHR 70@70 Senior Nurse Research Leaders Program

Services to Profession

-          Respiratory Professional Care Advisory board member 2022 - now

-          European Respiratory Society (ERS) Task Force(TF)  Member

  • TF 2022-16 ERS/ATS Joint guideline on management of patients with IPF and lung cancer (active)
  • TF-2021-08 International guidelines for treatment of serious respiratory disease (active)

-          Co-lead PICO 5: Should opioids be used to reduce symptoms in people with serious illness related to lung disease?

-          Co-lead PICO 4: Should supplemental Oxygen be used to reduce symptoms in adults with serious lung disease?

o    ERS Statement on COVID-19: Guidance for follow-up TF-2020-14 published Eur Respir J Jan-2022

-          European working party: Evaluation of Workability in Sarcoidosis: Beyond the metrics of Pulmonary Function 08/23 – now

-          ERS College of Experts – congress and educational programme development (2016-now)

-          ERS Marie Skłodowska-Curie Postdoctoral Research Fellowships (RESPIRE) Reviewer (2017-now)

-          British Thoracic Society / ILD SAG member – programme development (2016-now)

-          Co-correspondent: key respiratory stakeholder organisations, clinicians and patients challenge to NICE De-prioritisation of breathlessness guidance 05/23

-          Lead author for ILD-IN rebuttal to the White paper ILD Service Optimisation for the New NHS 03/23

-          South West Integrated Clinical and Practitioner Academic (ICA) Programme reviewer 2022-24

Peer Review: Abstracts & Symposia

-          ATS International Conferences 2015-2021

-          ERS Congresses 2014-2021

-          International Society of Quality-of-Life Research (ISOQOL) Conferences 2014-2019

Peer Review: Manuscripts

-          American Journal British Medical Journal | Thorax | Chest | European Respiratory Journals | Journal of Respirology

Terms of office served

-          Royal College of Nursing (RCN) Credentialing Assessor in Advanced Practice; 2017-20

-          Faculty | Scientific Committee: Advancing IPF Research (AIR): Europe 2013-23

-          British Lung Foundation (BLF) Taskforce for Lung Health: 2018-20

-          European Union IPF and Related Disorders Scientific Advisory Board: Chair Elect 2019-21

-          American Thoracic Society Program Committee Chair Nursing Assembly; 2019-21

-          ILD Interdisciplinary National Network elected Chair: 2017-19

-          American Thoracic Society Program Committee Chair-elect Nursing Assembly 2018-19

-          Elected Chair: London and South East Nursing and Allied Health Professional Group 2016-19

-          American Thoracic Society Awards Committee 2017-19

-          American Thoracic Society Program committee Nursing Assembly 2015-18

-          American Thoracic Society Members In Transition & Training Committee 2016-17

-          European Respiratory Society (ERS) Secretary to Nursing Assembly; 3 year term: 2016-19

-          American Thoracic Society (ATS) Awards Committee; 5 year term: 2016-20

-          ILD Interdisciplinary Network Co-Chair 2015-17

Consultancy (advisory boards 2023)

-          Boehringer Ingelheim & Action for Pulmonary Fibrosis: Development of interstitial lung disease services

-          Boehringer Ingelheim & Action for Pulmonary Fibrosis: Enhancing patient outcomes: collaboration for the improvement of interstitial lung disease (ILD) services across the UK


Adjunct Professional Skills

-          Independent Expert witness 2023 –

-          Medico-Legal Skills CPD training Imperial College 2021

-          Associate Clinical Advisor:  Parliamentary Health Service Ombudsman (PHSO) from 2010 – present (formerly Health Care Commission 2006-2010 & Commission for Health Improvement 2003-2006)

Current Guest Editor Series:

‘Leading Women in respiratory clinical sciences’ Invited international letter series for Journal Respirology November 2023 – July 2024. Editors Anne-Marie Russell and Kathy Lindell

Digital Resources

ILD Podcast Series:

The ILD Academy ‘Spotlight Podcasts’ 2022 feature prominent members of the UK and Ireland ILD community. Sponsored by Boehringer Ingelheim and hosted by Dr AM Russell the podcasts hope to shine a spotlight on the great work being done around the country, and break down some of the challenges facing us in delivering excellent care to our patients:

Patient and Public Published Reports:

Cassidy N, Fox, L Love M,  Byrne I, Doyle AM, Korn B, Shanagher D, Shone T, Cullen M, Cullen T, Mullaney P, O'Carroll N, O'Dowd G, O'Sullivan T, Russell AM. Irish Lung Fibrosis Association Palliative Care and Planning for the Future World Café Report 2018

Russell AM*, Taylor K, Cave P Rhythm & song: Breath management in Idiopathic Interstitial Pneumonias (IIP’s): Pilot Study. Scientific Report 2017 British Lung Foundation


Recent publications


Bramhill, C, Langan, D, Mulryan, H, Eustace-Cook, J, Russell, A-M, Brady, A-M & Carr, ZJ (ed.) 2024, 'A scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF)', PLoS ONE, vol. 19, no. 2, e0297832.

Althobiani, MA, Shuttleworth, R, Conway, J, Dainton, J, Duckworth, A, Da Ponte, AJ, Mandizha, J, Lanario, JW, Gibbons, MA, Lines, S, Scotton, CJ, Hurst, JR, Porter, JC & Russell, A-M 2024, 'Supporting self-management for patients with Interstitial Lung Diseases: Utility and acceptability of digital devices', PLOS digital health, vol. 3, no. 1, e0000318.

Visca, D, Centis, R, Pontali, E, Zampogna, E, Russell, AM, Migliori, GB, Andrejak, C, Aro, M, Bayram, H, Berkani, K, Bruchfeld, J, Chakaya, JM, Chorostowska-Wynimko, J, Crestani, B, Dalcolmo, MP, D’Ambrosio, L, Dinh-Xuan, AT, Duong-Quy, S, Fernandes, C, García-García, JM, de Melo Kawassaki, A, Carrozzi, L, Martinez-Garcia, MA, Martins, PC, Mirsaeidi, M, Mohammad, Y, Naidoo, RN, Neuparth, N, Sese, L, Silva, DR, Solovic, I, Sooronbaev, TM, Spanevello, A, Sverzellati, N, Tanno, L, Tiberi, S, Vasankari, T, Vasarmidi, E, Vitacca, M & Annesi-Maesano, I 2023, 'Clinical standards for diagnosis, treatment and prevention of post-COVID-19 lung disease', International Journal of Tuberculosis and Lung Disease, vol. 27, no. 10, pp. 729-741.

Richards, DA, Bollen, J, Jones, B, Melendez-Torres, GJ, Hulme, C, Cockcroft, E, Cook, H, Cooper, J, Creanor, S, Cruickshank, S, Dawe, P, Doris, F, Iles-Smith, H, Kent, M, Logan, P, O'Connell, A, Onysk, J, Owens, R, Quinn, L, Rafferty, AM, Romanczuk, L, Russell, AM, Shepherd, M, Singh, SJ, Sugg, HVR, Coon, JT, Tooze, S, Warren, FC, Whale, B & Wootton, S 2023, 'Evaluation of a COVID-19 fundamental nursing care guideline versus usual care: The COVID-NURSE cluster randomized controlled trial', Journal of Advanced Nursing.

Bramhill, C, Langan, D, Mulryan, H, Eustace-Cook, J, Russell, AM & Brady, AM 2023, 'Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol', BMJ open, vol. 13, no. 5, e070513.

Picts, A & Russell, AM 2023, 'From healthcare professional to degree apprentice', Clinical Teacher.

Data set/Database

Russell, AM & Althobiani, M, De identified data set.csv, 2023, Data set/Database, figshare.


Mostard, RLM & Russell, AM 2023, 'Casting light on the many facets of sarcoidosis', Current Opinion in Pulmonary Medicine, vol. 29, no. 5, pp. 475-477.

King, C, Shlobin, OA, Spagnolo, P, Cottin, V, Mostard, RLM & Russell, AM 2023, 'Editorial introductions', Current Opinion in Pulmonary Medicine, vol. 29, no. 5, pp. VII-IX.


Althobiani, MA, Ranjan, Y, Russell, A-M, Jacob, J, Orini, M, Sankesara, H, Conde, P, Rashid, Z, Dobson, R, Hurst, J, Porter, J & Folarin, A 2024, 'Home Monitoring to Detect Progression of Interstitial Lung Disease: A Prospective Cohort Study', Respirology, pp. 1-5.

Literature review

Smallwood, N, Pascoe, A, Russell, A-M, Wijsenbeek, M, Holland, AE, Romero, L & Ekström, M 2024, 'Opioids for the palliation of symptoms in people with serious respiratory illness: a systematic review and metaanalysis', European Respiratory Review.

Wells, M, Harding, S, Dixon, G, Russell, A-M & Barratt, S 2024, 'Patient and caregiver shared experiences of pulmonary fibrosis (PF): a systematic literature review', Respiratory Medicine, vol. 227.


Bramhill, C, Langan, D, Mulryan, H, Eustace-Cook, J, Russell, A-M & Brady, A-M 2023 'A scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF)' medRxiv.

Review article

Holland, AE, Spathis, A, Marsaa, K, Bausewein, C, Ahmadi, Z, Burge, AT, Pascoe, A, Gadowski, AM, Collis , P, Jelen, T, Reilly, C, Reinke, L, Romero, L, Russell, A-M, Sagghu, R, Solheim, J, Vagheggini, G, Vandendungen, C, Wijsenbeek, M, Tonia, T, Smallwood, N & Ekström, M 2024, 'European Respiratory Society Clinical Practice Guideline on symptom management for adults with serious respiratory illness. Task Force Report', European Respiratory Journal.

Althobiani, MA, Russell, A-M, Jacob, J, Ranjan, Y, Folarin, A, Hurst, JR & Porter, JC 2024, 'Interstitial lung disease: A review of classification, aetiology, epidemiology, clinical diagnosis, pharmacological and non-pharmacological treatment', Frontiers in Medicine, vol. 11, 1296890.

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