Aims of the RAPID project...
Through the RAPID project we will find out why people do not seek help for their symptoms when they begin. We are investigating perceptions and knowledge of RA in the general public (people without RA) and are looking at how they would respond to experiencing the first symptoms of RA. We aim to explore:
1) what members of the public know about RA
2) how they perceive this condition and
3) the triggers they may use to seek help from health care professionals
What the project entails...
1) We have conducted qualitative interviews with 38 members of the general public without any form of inflammatory arthritis about their perceptions of RA symptoms and decisions to seek help were they to experience such symptoms. Some findings are reported in the following article:
A qualitative investigation of the barriers to help-seeking among members of the public presented with symptoms of new-onset rheumatoid arthritis.
Simons G1, Mallen CD2, Kumar K2, Stack RJ2, Raza K2. J Rheumatol. 2015 Apr;42(4):585-92. doi: 10.3899/jrheum.140913. Epub 2015 Feb 1.
See http://www.ncbi.nlm.nih.gov/pubmed/25641894 for a summary and a link to download the full article
2) A second set of interviews with another 31members of the general public (again without a history of arthritis) was conducted. As part of the interview, interviewees were asked to respond to several short stories describing symptoms of RA and other long-term illnesses such as angina.
3) A survey on awareness of RA symptoms in adults was completed by 1088 people (291 males, 788 females). Data analysis is currently ongoing
4) Following the full analysis of the research data which is currently ongoing we will make a start with developing materials for the general public to increase awareness of RA.