Recent publications
Article
the PC-COS Children Study Group, Seylanova, N, Chernyavskaya, A, Degtyareva, N, Mursalova, A, Ajam, A, Xiao, L, Aktulaeva, K, Roshchin, P, Bobkova, P, Aiyegbusi, OL, Anbu, AT, Apfelbacher, C, Asadi-Pooya, AA, Ashkenazi-Hoffnung, L, Brackel, C, Buonsenso, D, De Groote, W, Diaz, JV, Dona, D, Galvin, AD, Genuneit, J, Goss, H, Hughes, SE, Jones, CJ, Kuppalli, K, Malone, LA, Mcfarland, S, Needham, DM, Nekliudov, N, Nicholson, TR, Oliveira, CR, Schiess, N, Segal, TY, Sigfrid, L, Thorne, C, Vijverberg, S, Warner, JO, Were, WM, Williamson, PR & Munblit, D 2024, 'Core Outcome Measurement Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID) in Children and Young People: An International Delphi Consensus Study “PC-COS Children”', European Respiratory Journal. https://doi.org/10.1183/13993003.01761-2023
Hughes, SE, McMullan, C, Aiyegbusi, OL, Shaw, K, Kinsella, F, Ferguson, P, Khatsuria, F, Burns, D, Pyatt, L, Ansell, J, Chakera, E, Richardson-Abraham, J, Denniston, AK, Davies, EH, Craddock, C & Calvert, M 2024, 'Protocol for a mixed-methods study to develop and feasibility test a digital system for the capture of Patient-Reported Outcomes (PROs) in patients receiving Chimeric Antigen Receptor T-cell (CAR-T) therapies (The PRO-CAR-T Study)', BMJ open, vol. 14, no. 3, e085392. https://doi.org/10.1136/bmjopen-2024-085392
Aiyegbusi, OL, Cruz Rivera, S, Roydhouse, J, Kamudoni, P, Alder, Y, Anderson, N, Baldwin, RM, Bhatnagar, V, Black, J, Bottomley, A, Brundage, M, Cella, D, Collis, P, Davies, E-H, Denniston, AK, Efficace, F, Gardner, A, Gnanasakthy, A, Golub, RM, Hughes, SE, Jeyes, F, Kern, S, King-Kallimanis, BL, Martin, A, Mcmullan, C, Mercieca-Bebber, R, Monteiro, J, Peipert, JD, Quijano-Campos, JC, Quinten, C, Rantell, KR, Regnault, A, Sasseville, M, Schougaard, LMV, Sherafat-Kazemzadeh, R, Snyder, C, Stover, AM, Verdi, R, Wilson, R & Calvert, MJ 2024, 'Recommendations to address respondent burden associated with patient-reported outcome assessment', Nature Medicine. https://doi.org/10.1038/s41591-024-02827-9
Turner, G, McMullan, C, Aiyegbusi, OL, Hughes, S, Walker, A, Jeyes, F, Adler, Y, Chong, A, Buckland, L, Stanton, DE, Davies, EH, Haroon, S & Calvert, M 2023, 'Co-production of a feasibility trial of pacing interventions for Long COVID', Research Involvement & Engagement, vol. 9, no. 1, 18. https://doi.org/10.1186/s40900-023-00429-2
Gorst, SL, Seylanova, N, Dodd, SR, Harman, NL, O'Hara, M, Terwee, CB, Williamson, PR, Needham, DM, Munblit, D, Nicholson, TR, PC-COS Study Group, Aiyegbusi, OL, Calvert, M, Haroon, S & Hughes, SE 2023, 'Core outcome measurement instruments for use in clinical and research settings for adults with post-COVID-19 condition: an international Delphi consensus study', The Lancet Respiratory Medicine. https://doi.org/10.1016/S2213-2600(23)00370-3
McMullan, C, Retzer, A, Hughes, S, Aiyegbusi, OL, Bathurst, C, Boyd, A, Coleman, J, Davies, EH, Denniston, A, Dunster, H, Frost, C, Harding, R, Hunn, A, Kyte, D, Malpass, R, McNamara, G, Mitchell, SA, Mittal, S, Newsome, P, Price, G, Rowe, A, van Reil, W, Walker, A, Wilson, R & Calvert, M 2023, 'Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial', Journal of Patient-Reported Outcomes, vol. 7, no. 1, 98. https://doi.org/10.1186/s41687-023-00634-3
Solovyeva, O, Dimairo, M, Weir, CJ, Hee, SW, Espinasse, A, Ursino, M, Patel, D, Kightley, A, Hughes, S, Jaki, T, Mander, AP, Evans, TRJ, Lee, S, Hopewell, S, Rantell, KR, Chan, A-W, Bedding, A, Stephens, R, Richards, D, Roberts, L, Kirkpatrick, J, de Bono, J & Yap, C 2023, 'Development of consensus-driven SPIRIT and CONSORT extensions for early phase dose-finding trials: the DEFINE study', BMC Medicine, vol. 21, no. 1, 246. https://doi.org/10.1186/s12916-023-02937-0
Aiyegbusi, OL, Davies, EH, Myles, PR, Williams, T, Frost, C, Haroon, S, Hughes, S, Wilson, R, McMullan, C, Subramanian, A, Nirantharakumar, K & Calvert, M 2023, 'Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies', BMJ evidence-based medicine. https://doi.org/10.1136/bmjebm-2023-112253
Cruz Rivera, S, Liu, X, Hughes, S, Dunster, H, Manna, E, Denniston, A & Calvert, M 2023, 'Embedding patient-reported outcomes at the heart of artificial intelligence health-care technologies', The Lancet Digital Health, vol. 5, no. 3, pp. e168-e173. https://doi.org/10.1016/S2589-7500(22)00252-7
Comment/debate
Boisvert, I, Dunn, AG, Lundmark, E, Smith-Merry, J, Lipworth, W, Willink, A, Hughes, SE, Nealon, M & Calvert, M 2023, 'Disruptions to the hearing health sector', Nature Medicine, vol. 29, pp. 19-21. https://doi.org/10.1038/s41591-022-02086-6
Routen, A, O'Mahoney, LL, Aiyegbusi, OL, Alder , Y, Banerjee, A, Buckland, L, Brightling, CE, Calvert, M, Camaradou, J, Chaturvedi, N, Chong, A, Dalrymple, E, Eggo, RM, Elliott, P, Evans, RA, Gibson, A, Haroon, S, Herrett, E, Houchen-Wolloff, L, Hughes, S, Jeyes, F, Matthews, K, McMullan, C, Morley, J, Shafran, R, Smith, N, Stanton, DE, Stephenson, T, Sterne, JAC, Turner, G, Ward, H & Khunti, K 2023, 'Patient and public involvement within epidemiological studies of Long Covid in the United Kingdom', Nature Medicine. https://doi.org/10.1038/s41591-023-02251-5
Review article
Hughes, SE, Aiyegbusi, OL, McMullan, C, Turner, GM, Anderson, N, Cruz Rivera, S, Collis, P, Glasby, J, Lasserson, D & Calvert, M 2024, 'Patient-reported outcomes in integrated health and social care: A scoping review', JRSM Open, vol. 15, no. 3, pp. 1-9. https://doi.org/10.1177/20542704241232866
Aiyegbusi, OL, McMullan, C, Hughes, SE, Turner, GM, Subramanian, A, Hotham, R, Davies, EH, Frost, C, Alder, Y, Agyen, L, Buckland, L, Camaradou, J, Chong, A, Jeyes, F, Kumar, S, Matthews, KL, Moore, P, Ormerod, J, Price, G, Saint-Cricq, M, Stanton, D, Walker, A, Haroon, S, Denniston, AK, Calvert, MJ, Brown, K, Singh Chandan, J, Gkoutos, GV, Jackson, LJ, Lord, JM, Marshall, T, Marwaha, S, Myles, P, Nirantharakumar, K, Rivera, SC, Sapey, E, Simms-Williams, N, Williams, T & Wraith, DC 2023, 'Considerations for patient and public involvement and engagement in health research', Nature Medicine, vol. 29, no. 8, pp. 1922-1929. https://doi.org/10.1038/s41591-023-02445-x
Chandan, J, Brown, K, Simms-Williams, N, Bashir, NZ, Camaradou, J, Heining, D, Turner, G, Cruz Rivera, S, Hotham, R, Minhas, S, Nirantharakumar, K, Sivan, M, Khunti, K, Raindi, D, Marwaha, S, Hughes, S, McMullan, C, Marshall, T, Calvert, M, Haroon, S & Aiyegbusi, OL 2023, 'Non-pharmacological therapies for post-viral syndromes, including Long COVID: a systematic review', International Journal of Environmental Research and Public Health, vol. 20, no. 4, 3477. https://doi.org/10.3390/ijerph20043477
Shaver, N, Katz, M, Asamoah, GD, Linkins, L-A, Abdelkader, W, Beck, A, Bennett, A, Hughes, S, Smith, M, Begin, M, Coyle, D, Piggott, T, Kagina, B, Welch, V, Colijn, C, Earn, D, El Emam, K, Heffernan, J, O’Brien, S, Wilson, K, Collins, E, Navarro, T, Beyene, J, Boutron, I, Bowdish, D, Cooper, C, Costa, A, Curran, J, Griffith, L, Hsu, AP, Grimshaw, JM, Langlois, M-A, Li, X, Pham-Huy, A, Raina, P, Rubini, M, Thabane, L, Wang, H, Xu, L, Brouwers, M, Horsley, T, Lavis, J, Iorio, A & Little, J 2023, 'Protocol for a living evidence synthesis on variants of concern and COVID-19 vaccine effectiveness', Vaccine, vol. 41, no. 43, pp. 6411-6418. https://doi.org/10.1016/j.vaccine.2023.09.012
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