Researchers shared how synthetic health data can be generated to scale up scarce patient data so that meaningful statistical conclusions can be drawn, whilst keeping patient information private. It also helps to provide researchers with data more quickly, without having to wait for permissions, meaning research can progress at pace.
Event participants also considered the significance of studying diverse populations for a better understanding of diseases and the importance of unconsented data access to ensure everyone is represented in the data, so that research helps to improve care for everyone.
Hands on activities
Members of the public were invited to get creative in a hands-on activity that sparked conversation about how we give information about our health to computers versus how we might share with a doctor and some of the challenges those discrepancies pose when analysing health data. For example, unstructured data recorded as part of a conversation with a doctor can be much harder to decode than tick boxes on a computer screen, however, advanced machine learning is starting to get to the bottom of how to categorise free flow fields in medical records.