COVID-Transplant Study Privacy Notice

Background Information

In order to carry out the COVID-Transplant research project, we will need to collect information about you, and some of this information will be your personal data. Under data protection law, we have to provide you with very specific information about what we do with your data and about your rights. We have set out below the key information you need to know about how we will use your personal data.

 The University of Birmingham’s web page ‘Data Protection - How the University Uses Your Data’ sets out much of this information, including how to ask any questions you may have about how your personal data is used, exercise any of your rights or complain about the way your data is being handled.  The rest of the key information you need to know about how we used your personal data is set out below.

Who is the Data Controller?

The University of Birmingham, Edgbaston, Birmingham B15 2TT and the University Hospitals Birmingham NHS Foundation Trust are the data controllers for the personal data that we process in relation to you.

What data are we processing and for what purpose will we use it?

We will collect and process your personal data to conduct the research project, as explained in the Patient Information Sheet.

In addition to the data we collect directly from you, we will also collect data relating to you from NHS Digital. These data will be your name, data of birth, NHS number and hospital number.

What is our legal basis for processing your data?

The legal justification we have under data protection law for processing your personal data is that it is necessary to do so for our research, which is a task we carry out in the public interest. 

These data will not be used to make decisions about you.

Who will my personal data be shared with?

For the purposes of the research project, we will share your personal data with COVID-Transplant study team. This research team includes staff from University Hospitals Birmingham Foundation Trust and The University of Birmingham so that they can use this information to better understand how ‘shielding’ affects people, and to understand if transplant recipients experience a higher rate of COVID-19 infection, and if so, how severe it is.  The clinical members of the study team are based at University Hospitals Birmingham FT. The rest of the study team, including the study database staff, are based at The University of Birmingham. We have appropriate agreements in place with University Hospitals Birmingham FT to protect and safeguard your data.

How long will my personal data be kept?

Your data will be retained for between 10-25 years after completion of the study.

Are changes made to this webpage?

This privacy notice is effective from 05-June-2020 and is reviewed when necessary. Any changes will be published here.