Recent publications
Book
Peipert, D, Calvert, M & Aiyegbusi, OL 2025, Patient-centricity in the Biopharmaceutical Industry: Are We Nearly There Yet? A collection of perspectives from researchers, approvers and patients.
Article
Kyte, D, Fletcher, B, Horton, M, Damery, S, Aiyegbusi, OL, Anderson, N, Bissell, A, Calvert, M, Cockwell, P, Ferguson, J, Paap, MCS, Sidey-Gibbons, C, Turner, N, Verdi, R & Slade, A 2025, 'Development, Rasch Analysis and Validation of the Kidney Symptom Burden Questionnaire (KSB-Q)', Clinical Kidney Journal.
Unni, E, Schougaard, LMV, Aiyegbusi, OL, Mate, KKV, Austin, E, Greffin, K, Roberts, N, Grove, BE, Muehlan, H & ISOQOL Clinical practice SIG PROs in Telehealth Working Group 2025, 'Expert Consensus on Implementing Patient-Reported Outcomes in Telehealth: Findings from an International Delphi Study', Journal of Patient-Reported Outcomes.
Thomassen, D, Roychoudhury, S, Amdal, CD, Reynders, D, Musoro, JZ, Sauerbrei, W, Goetghebeur, E, Le Cessie, S & SISAQOL-IMI Work Package 3 2025, 'Handling missing values in patient-reported outcome data in the presence of intercurrent events', BMC Medical Research Methodology, vol. 25, 56. https://doi.org/10.1186/s12874-025-02510-8
McMullan, C, Haroon, S, Turner, G, Aiyegbusi, OL, Hughes, SE, Flanagan, S, Subramanian, A, Nirantharakumar, K, Davies, EH, Frost, C, Jackson, L, Guan, N, Alder, Y, Chong, A, Buckland, L, Jeyes, F, Stanton, DE & Calvert, M 2025, 'Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions', Scientific Reports.
Baddeley, E, Sivell, S, Retzer, A, Nelson, A, Bulbeck, H, Seddon, K, Grant, R, Adams, R, Watts, C, Aiyegbusi, OL, Calvert, M & Byrne, A 2025, 'Wellbeing and coping: key aspects of unmet need of people living with glioma', Neuro-Oncology Practice. https://doi.org/10.1093/nop/npae127
Nikolovski, J, Morton, RL, Mercieca-Bebber, R, Armstrong, M, Hartas, G, Rossiter, B, Fagan, M, Tinsley, M, Snyder, C, Aiyegbusi, OL, Amin-Korim, R, Sutherland, K & Rutherford, C 2024, 'Acceptability and timing considerations when administering patient-reported outcome measures (PROMs) among people with chronic health conditions who are culturally and linguistically diverse (CALD): a qualitative study protocol', BMJ open, vol. 14, no. 9, e083346. https://doi.org/10.1136/bmjopen-2023-083346
Yap, C, Aiyegbusi, OL, Alger, E, Basch, E, Bell, J, Bhatnagar, V, Cella, D, Collis, P, Dueck, AC, Gilbert, A, Gnanasakthy, A, Greystoke, A, Hansen, AR, Kamudoni, P, Kholmanskikh, O, King-Kallimanis, BL, Krumholz, H, Minchom, A, O'Connor, D, Petrie, J, Piccinin, C, Rantell, KR, Rauz, S, Retzer, A, Rizk, S, Wagner, L, Sasseville, M, Seymour, LK, Weber, HA, Wilson, R, Calvert, M & Peipert, D 2024, 'Advancing Patient-Centric Care: Integrating Patient Reported Outcomes for Tolerability Assessment in Early Phase Clinical Trials – Insights from an Expert Virtual Roundtable', EClinicalMedicine, vol. 76, 102838. https://doi.org/10.1016/j.eclinm.2024.102838
CHAPTER Group, Hodgetts Morton, V, Man, R, Perry, R, Hughes, T, Tohill, S, MacArthur, C, Magill, L & Morris, RK 2024, 'Childbirth Acquired Perineal Trauma study (CHAPTER): a UK prospective cohort study protocol', BMJ open, vol. 14, no. 5, e086724. https://doi.org/10.1136/bmjopen-2024-086724
the PC-COS Children Study Group, Seylanova, N, Chernyavskaya, A, Degtyareva, N, Mursalova, A, Ajam, A, Xiao, L, Aktulaeva, K, Roshchin, P, Bobkova, P, Aiyegbusi, OL, Anbu, AT, Apfelbacher, C, Asadi-Pooya, AA, Ashkenazi-Hoffnung, L, Brackel, C, Buonsenso, D, De Groote, W, Diaz, JV, Dona, D, Galvin, AD, Genuneit, J, Goss, H, Hughes, SE, Jones, CJ, Kuppalli, K, Malone, LA, Mcfarland, S, Needham, DM, Nekliudov, N, Nicholson, TR, Oliveira, CR, Schiess, N, Segal, TY, Sigfrid, L, Thorne, C, Vijverberg, S, Warner, JO, Were, WM, Williamson, PR & Munblit, D 2024, 'Core Outcome Measurement Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID) in Children and Young People: An International Delphi Consensus Study “PC-COS Children”', European Respiratory Journal. https://doi.org/10.1183/13993003.01761-2023
Comment/debate
Aiyegbusi, OL 2024, 'Comprehensive conservative care for kidney failure: The need for evidence-based guidance', Kidney International Reports. https://doi.org/10.1016/j.ekir.2024.06.013
Taylor, S, Law, K, Coomber‑Moore, J, Davies, M, Thistlethwaite, F, Calvert, M, Aiyegbusi, O & Yorke, J 2024, 'Correction: Patient‑reported outcome (PRO) instruments used in patients undergoing adoptive cell therapy (ACT) for the treatment of cancer: a systematic review', Systematic Reviews, vol. 13, no. 1, 117. https://doi.org/10.1186/s13643-024-02540-1
Other report
Elsman, EBM, Mokkink, LB, Terwee, CB, Beaton, D, Butcher, NJ, Gagnier, JJ, Tricco, AC, Aiyegbusi, OL, Berardi, A, Farmer, J, Haywood, KL, Krause, KR, Mayo-Wilson, E, Mehdipour, A, Szatmari, P, Touma, Z, Hofstetter, C, Markham, S, Ricketts, J, Smith, M, Moher, D & Offringa, M 2024, Guideline for Reporting Systematic Reviews of Outcome Measurement Instruments: Explanation & Elaboration. <https://www.prisma-statement.org/s/PRISMA-COSMIN-EE-Full-reports-version-June-2024.pdf>
Review article
Khatsuria, F, McMullan, C, Aiyegbusi, OL, Shaw, KL, Iqbal, R, Kinsella, F, Wilson, K, Pyatt, L, Lewis, M, Weldon, SMR, Burns, D, Chakraverty, R, Calvert, M & Hughes, S 2024, 'Development of a conceptual framework for an electronic patient-reported outcome (ePRO) system measuring symptoms and impacts of CAR T-cell therapies in patients with haematological malignancies', The Lancet Oncology, vol. 25, no. 10, pp. e476-e488. https://doi.org/10.1016/S1470-2045(24)00256-0
Sakthivel, P, Mostafa, A & Aiyegbusi, OL 2024, 'Factors that influence the selection of conservative management for end stage renal disease – a systematic review', Clinical Kidney Journal, vol. 17, no. 1, sfad269. https://doi.org/10.1093/ckj/sfad269
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