Patient and public involvement (PPI) in the design, management, conduct and dissemination of your project will help you carry out better research.
Involve patients and service users with lived experience of the researched condition and carers of those with first-hand experience. Involve them as early as possible in the research-planning process, garner a breadth of views and feedback, and engage with PPI at every stage of the project. This will help to:
- make your research more relevant
- understand what is acceptable to participants
- provide participants with clear patient-facing information
- improve the recruitment and consent process
- provide participants with a better experience of research
- better communicate results to participants at the end of the project.
Want to find out more?
The HRA offer further guidance on their website, explaining the four principles for meaningful involvement of patients and the public in health and social care research.
The HRA’s checklist provides information about public involvement to researchers applying for REC review.
The UK Standards for Public Involvement are a framework for what good public involvement looks like in all types of research activity.
The NIHR offers guidance for researchers new to public involvement in research.
Research Design Service (RDS) West Midlands has a public involvement fund available to researchers applying for funding.
Patient and Public Involvement and Engagement (PPIE) team
The PPIE team at UoB offers training, support and resources for research teams. Support is available at any stage of research and all levels of experience. Together with colleagues at University Hospitals Birmingham NHS Foundation Trust, the PPIE team run twice monthly drop-in advice sessions for researchers keen to talk through how best to plan and carry out involvement and engagement for their projects.
More information can be found on the PPIE website. Get in touch by email at: firstname.lastname@example.org
PPI Groups at the UoB
There are a number of established patient and public advisory groups associated with specific health conditions. These include, but aren’t limited to, cancer research, nursing, ageing research.
The Birmingham 1000 Elders group is a group dedicated to bringing researchers and older adults over the age of 60 together to carry out research into how we can age more healthily.
Institute for Mental Health Youth Advisory Group take part in a range of activities including conducting one-to-one consultations with researchers about their proposed research.
More information about PPI groups at UoB can be found by visiting the PPIE website.