ICECAP-SCM

The ICECAP Supportive Care Measure (ICECAP-SCM) has been developed as a tool for use in economic evaluation conducted in an end of life setting. The descriptive measure covers the attributes of: 

Choice – expressed in the questionnaire as ‘Having a say’ with questions worded as ‘being able to make decisions about my life and care’.  

Love and affection – expressed as ‘Being with people who care about you’ with questions worded as ‘being able to be with people who care about me’.  

Physical suffering – expressed as ‘Physical suffering’ with questions worded as ‘experiencing significant physical discomfort’.  

Emotional suffering – expressed as ‘Emotional suffering’ with questions worded as ‘experiencing emotional suffering’.  

Dignity – expressed as ‘Dignity’ with questions worded as ‘being able to maintain my dignity and self-respect’.  

Being supported – expressed as ‘Being supported’ with questions worded as ‘being able to have the help and support that I need’.  

Preparation – expressed as ‘Being prepared’ with questions worded as ‘Having had the opportunity to make the preparations I want to make’. 

The levels for each attribute are expressed in terms of capabilities. As part of the European Research Council funded project, EconEndLife, the measure is currently undergoing assessments of validity; if you might be interested in using the measure or contributing to this work, please contact us to discuss further.

Find out more about the EconEndLife project, being conducted by researchers at the University of Birmingham by visiting the site

This video by Elisabeth Huynh, explains how values have been elicited for the ICECAP-SCM.

ICECAP-SCM questionnaire

Download a copy of the ICECAP-SCM

Please remember to register with us before you start, by using the Registration form

Once you have completed the form please email a copy to Philip Kinghorn

A proxy version of the questionnaire is also available upon registration.

ICECAP-SCM Translations

A German translation of the ICECAP-SCM has been developed and validated by Marie Dorow, Janine Stein, Paula Liegert, Carolyn Edwards and Steffi Riedel-Heller from the University of Leipzig, Medical Faculty, Institute of Social Medicine, Occupational Health and Public Health (ISAP), and Judith Dams and Hans-Helmut König from the Department of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf (UKE).

ICECAP_validiert_German

References

Information about the general ‘EconEndLife’ framework, within which the ICECAP-SCM and ICECAP-CPM can be applied, can be found in:

Coast J, Bailey C, Canaway A, Kinghorn P.  Measuring and valuing outcomes for care at the end of life: the capability approach. In Round J (Ed.) Care at the End of Life: An Economic Perspective.  Heidelberg: Springer.  2016.  pp.89-101

Coast J (2014) Strategies for the economic evaluation of end of life care: Making a case for the capability approach. Expert review of Pharmacoeconomics & Outcomes Research. 14(4): 473-482

Kinghorn P & Coast J. A Health Economics Response to the Review of the Liverpool Care Pathway. Journal of Palliative Medicine. December 2013, 16(12):1614-1616.

The selection of the attributes for ICECAP-SCM (Supportive Care Measure) is described in:

Sutton E, Coast J.  “Development of a supportive care measure for economic evaluation of end-of-life care, using qualitative methods”.  Palliative Medicine.  2014;28:151-157.  doi: 10.1177/0269216313489368

Pilot valuation work for the ICECAP-SCM is described in:

Coast J, Huynh E, Kinghorn P, Flynn T (2016) “Complex Valuation: Applying ideas from the complex intervention framework to valuation of a new measure for end of life care”, PharmacoEconomics, 34, 499-508.

Papers relating to the use of the ICECAP-SCM:

Bailey C, Orlando R, Kinghorn P, Armour K, Perry R, Jones L, Coast J. (2016) “The ICECAP-SCM tells you more about what I’m going through” - Measuring quality of life amongst patients receiving supportive and palliative carePalliative Medicine. Online first. 1-11, DOI: 10.1177/0269216315624890