The Centre for Childhood Cancer Survivor Studies (CCCSS)

Most children with cancer in the UK are treated by clinicians who are members of the Children's Cancer and Leukaemia Group (CCLG), formerly the United Kingdom Children’s Cancer Study Group (UKCCSG).

As a result of the Director being a full member of this organisation, and also being a member of its Late Effects Group (with responsibilities concerning CCLG policy in relation to the care of survivors) excellent links are maintained with the clinicians treating and following-up children with cancer.

The Centre also currently has a Cancer Research UK Graduate Training Fellowship in Cancer Public Health and Epidemiology.

UK General Data Protection Regulations require that individuals are informed fairly and transparently of the use of their data. The Centre for Childhood Cancer Survivor Studies (CCCSS) has provided the following material:

• Privacy Notice: How the CCCSS deals with personal data
• Patient Notification Document: Reasons for research, why individuals are included in research and rights of data subjects
• Study Protocol: Detailed background to research, including how research is undertaken and how results are published

There are close collaborative research links with the Childhood Cancer Research Group, based at the University of Oxford, which maintains the population-based National Registry of Childhood Tumours. The Centre is well known internationally through its publications and attendance at most important meetings concerned with survivors of childhood cancer.

Collaborative international studies of the adverse consequences of irradiation in childhood have been undertaken including data relating to survivors of the atomic bombs in Japan. There is an established international collaborative programme of studies of the incidence and aetiology of second primary neoplasms after childhood cancer in Britain and France ongoing funded by the European Union.

Good links exist with the Childhood Cancer Survivor Study which is ongoing in North America and co-ordinated from St Jude Children's Research Hospital in Memphis. In addition, there are international collaborative initiatives, in particular an international study of the rates and causes of second primary tumours after Wilms’ tumour is being developed and an international collaborative study of the joint influences of radiation and genotype on breast cancer risk is on-going and is funded by the European Union under the 6th Framework Programme.

• UK - SIGN
• USA - Survivorship Guidelines

We currently have no vacancies or PhD projects. Future vacancies will be advertised here. 

• Cancer Research UK
• Children's Cancer and Leukaemia Group (CCLG) (Merger of the UK Childhood Leukaemia Working Party and the United Kingdom Children's Cancer Study Group (UKCCSG))
• Childhood Cancer Research Group (CCRG) - now closed (research activity ceased in 2014)
• Office of Cancer Survivorship at the National Cancer Institute
• Young Lives vs Cancer
• Childhood Cancer Survivor Study, St Jude Children's Research Hospital in Memphis (CCSS)

If you would like to reach out to a member of our team, the postal address for the Centre is:

Centre for Childhood Cancer Survivor Studies
Department of Applied Health Sciences
The Robert Aitken Institute for Clinical Research Building 
University of Birmingham
B15 2TY 
United Kingdom