Birmingham 1000 Elders privacy notice

This page provides information about how the University of Birmingham (the “University”) uses your personal data while you are a member of the Birmingham 1000 Elders group.

It is important that the personal information we hold about you is accurate and current. Please keep your personal information updated during your relationship with us.

What personal data will be processed?

We collect information about you when you join the group by completing an application form. We also collect additional information during your membership. The information we collect includes, but is not limited to:

On the application form:

  • Name, title/s and full postal address
  • Contact details such as email addresses, social media links and telephone numbers
  • Your date of birth
  • Gender, description of ethnic origin, marital status, current or past occupation, and highest level of education
  • Information relating to your health – chronic illness and medications
  • How you heard about us
  • Contact notes relating to your involvement with us for example if you do not wish to receive a newsletter.

During membership:

  • Information relating to events that we organise and you attend such as Agewell
  • Your feedback on your dealings with us
  • Any photographs you share with us or we take of you at our events (we will only take and use these photos with your consent).
    • Research project specific and depends upon the research being undertaken.

What is the purpose of the processing?

The University will process your personal data for the following purposes:

  • communicate with you about our research projects and events
    • manage our events
    • contact you about opportunities to volunteer for research projects involving a member of staff at the University
    • keep a record of your relationship with us, including your feedback to understand how we can improve our communications with you
  • occasionally we conduct analysis of our members by post code or particular area where supporters reside to establish our geographical reach.

What is the legal basis of the processing?

We process your personal data for the purposes above based on the consent you give when joining the group.

Who will your personal data be shared with?

Within the University, your data is shared with staff responsible for the managing of the Birmingham 1000 Elders group. 

Based on the consent given when joining the group, we will share your contact details and relevant information on your profile with members of staff at the University that are conducting research that you may be interested in volunteering for.

How long is your data kept?

We keep your personal data as part of our records for as long as you are a registered member of the group or if the group ceases to operate.

You may withdraw your consent at any time by emailing or write to:

Birmingham 1000 Elders Administrator
College of Medical and Dental Sciences
University of Birmingham
Birmingham B15 2TT 

We may anonymise your personal information for using it for statistical purposes.

When your information is passed to member of staff working on a research project, your personal data will be kept by them in line with the project retention schedule, this may be determined by the funding body and will be in line with the University Code of Practice for Research. Information on how your information will be used as part of a project will be provided at the moment of contact or when additional information are collected.

Your rights in relation to your data

If you would like more information on your rights; you would like to exercise any right; you have any queries relating to the University’s processing of your personal data, or you wish to make a complaint about how your data is being or has been processed please contact:

The Data Protection Officer
Legal Service
The University of Birmingham
Birmingham B15 2TT

Telephone: +44 (0)121 414 3916

You also have a right to complain to the Information Commissioner's Office (ICO) about the way in which we process your personal data. You can make a complaint using the ICO’s website: