If you need the help of patient research partner(s) with a grant proposal (e.g. in the form of a letter of support or development of a lay summary), a research project which is about to start or an ongoing research project, please complete the following request form. Upon submission we will contact those patient research partners we feel might be able to help you with your project. It would be helpful if you can be as detailed as possible to help you get connected with the right patient research partner(s) as soon as possible!
We welcome requests from all members of the Rheumatology Research Group (RRG) and their collaborators. If you are not a member of the RRG but would like to get input, please contact one of our Principal Investigators. As a rule we can only support research where a member of the RRG is a point of contact for the patient research partners.
Patient research partners do get involved in research alongside their normal activities and jobs, so please leave plenty of time between making the request for support and any deadlines you might have for tasks to be done.
1. Time: Please be aware that patient research partners may have full time jobs, caring responsibilities, or other commitments that mean they are not always able to provide input to your project at short notice. Please make sure that you leave plenty of time before any deadlines when asking for input. All patient involvement is voluntary. Patient partners may choose to stop their involvement in some, or all activities you require at any time.
2. Activities: Similarly, patient research partners are free to pick and choose which activities they get involved in. They may for example be able to help you with a lay summary but might not want to or be able to attend a (online) research meeting. Please respect these personal preferences.
3. GDPR: We will provide you with contact details of patient research partners who have indicated they are happy to provide advice. Please make sure that you treat their personal details confidentially and hold any details securely in line with GDPR guidelines.