Privacy Statement

How will my personal data be kept secure?

All information passed onto the University of Birmingham is securely stored and kept strictly confidential under the provisions of the Data Protection Act 2018. 

The University takes great care to ensure that personal data is handled, stored and disposed of confidentially and securely. Staff receive regular data protection training and the University has put in place organisational and technical measures so that personal data is processed in accordance with the data protection principles set out in data protection law. More information on how the University processes personal data can be found on the University’s website on the page ‘Data Protection – How the University Uses Your Data’ (

How long will my personal data be kept?

Personal data will be kept for a minimum of 25 years once the study has finished.

Who is the data controller?

The University of Birmingham, Edgbaston, Birmingham B15 2TT is the data controller for the personal data that has been processed in the trial in relation to you. This means that the University is responsible for looking after your information and using it properly.

Who is the data processor?

The University of Birmingham is the data processor who has used the information from you and your medical records in order to undertake this study.

What is our legal basis for processing data?

The legal justification we have under data protection law for processing your personal data is that it is necessary for our research, which is a task we carry out in the public interest. This means that it is a legal requirement that the data we collected has only been used for research purposes to benefit public health. These data will not be used to make decisions about a patient’s personal health.

What are the choices about how information is used?

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. This means that patients cannot see or change their data held and the research team will keep the research data about you that they already have.  

Where can I find out more about how my information is used?

You can find out more about how we use your information

The Data Protection Office, Legal Services, The University of Birmingham, Edgbaston, Birmingham B15 2TT

Email:  Telephone: 0121 414 3916