Chronic Kidney Disease (CKD) affects around 1 in 7 people in the UK. Some people with advanced CKD may go on to need demanding treatments, such as dialysis which can affect their quality of life.
Some researchers and doctors believe it would be helpful for patients to provide reports about their symptoms and quality of life in between their regular hospital appointments by completing a questionnaire on their computer or smartphone. We call these questionnaires ‘electronic Patient-Reported Outcome Measures’ or ePROMs.
If the ePROM report shows that a patient needs urgent care, we think this will help a doctor take action straight away, rather than waiting until the next clinic appointment. We believe this could help to manage a patient’s CKD and symptoms better.
No-one has tried using ePROM reporting for people with CKD, so we need to find out if it will work. In this study, we will test an ePROM system in a small group of patients with CKD, who are being treated at the Queen Elizabeth Hospital in Birmingham.
This is a pilot study. We will use the results to plan a much larger clinical trial, which will help show if ePROM reporting in the NHS is actually better for patients.