Birmingham Rheumatology Research Patient Partnership (R2P2)
We believe that patients should have a say in research that is potentially for their benefit.
The Birmingham Rheumatology Research Patient Partnership (R2P2) is a group of patients who are actively involved in the work of the Rheumatology Research Group in the Institute of Inflammation and Ageing, University of Birmingham. R2P2 members advise our researchers about what research we should do, how we should go about it and how we can share it with the public.
Below you will find links to relevant information about R2P2 and the work that R2P2 contributes to. If you are interested in joining and becoming a patient research partner, please contact Becky Birch.
Latest news and updates
Being an R2P2 patient research partner in COVID 19 times
Yes things have had to change, but research has not stopped completely and indeed many projects have started up again. So input from patient research partners is still very much needed and patient research partners are still very much involved in research projects and grant applications. In addition, after a successful pilot we have also expanded the Student Patient Alliance to include more students, so patient research partners can also get involved with that.
It is important to note that for the time being any involvement will be through online/ telephone meetings and emails only, so you won’t be asked to attend in person meetings.
Unfortunately, we were also not able to have an annual meeting this year, we are hoping it is back on next year! In the meantime, we are hoping that the website and emails from the R2P2 coordinators with news and updates will keep you in the loop of what is going on!
Coronavirus (COVID-19) Updates
Various organisations have useful resources about COVID-19 which might be relevant for R2P2 members:
Coronavirus (COVID-19) - what is it and where to go for information (Versus Arthritis resource):
Versus Arthritis has lots of resources about different types of arthritis and in addition they have pulled together the latest advice on coronavirus and will regularly update this content.
Coronavirus and RA (NRAS resource):
The National Rheumatoid Arthritis Society has Rheumatoid Arthritis specific resources. In addition they now have a special Coronavirus page. Here you will find frequently asked questions, access to live COVID-19 question and answer sessions, as well as helpful links to NHS and Government information. The Coronavirus page now also has a short video with information on COVID-19 for South Asian patients living with a rheumatological condition in Hindu.
R2P2 patient research partners have been actively involved in a number of projects which have exciting updates:
The Rheumatology Research Group at the University of Birmingham is part of the Versus Arthritis funded Research into Inflammatory Arthritis Centre (RACE) Versus Arthritis. Patient research partners have been integral in securing a second cycle of funding for RACE and are continuing to be involved in the various research projects.
The MTR survey has reached enough respondents and was recently closed. The MTR project itself officially finished but analysis and writing of articles is of course ongoing. Watch this space for some key findings!
Together with patient research partners, clinicians and the PREFER RA core team, a big survey has been developed which we are about to pre-test. Those of you who are involved with PREFER can expect an invite for pre-testing shortly!
SPA is an exciting initiative to integrate patient involvement in the training of our research students. It has been going for a little over a year now and if a recent meeting with the students from the pilot and some of the patient research partners involved in the scheme is anything to go by, the scheme is a big success in general.
See past news and updates.