Latest news and updates
People with rheumatoid arthritis are less likely to take part in clinical research studies than before the pandemic.
The Pandemic and clinical trials: A recent survey conducted by the Versus Arthritis funded Research into Inflammatory Arthritis Centre (RACE) has shown that people with rheumatoid arthritis are less likely to take part in clinical research whilst COVID-19 is present in the community than they were before the pandemic.
The RACE patient research partners, including one of our very own R2P2 members, contributed to the survey design and were authors on the paper describing this important research. Read more about the study.
Am I at Risk of Developing Rheumatoid Arthritis?
NRAS has recently added the following resource to their website: Am I at risk of developing RA.
This booklet was developed together with both R2P2 patient research partners as well as with a group of international patient research partners as part of the EuroTEAM project. This resource is specifically developed for relatives of those living with RA. We are very proud that NRAS has chosen to include this resource and we think that this is an excellent example how collaborations between patient research partners, researchers and clinicians can have a very tangible and impactful outcome.
Coronavirus (COVID-19) Updates
Various organisations have useful resources about COVID-19 which might be relevant for R2P2 members:
Coronavirus (COVID-19) - what is it and where to go for information (Versus Arthritis resource):
Versus Arthritis has lots of resources about different types of arthritis and in addition they have pulled together the latest advice on coronavirus and will regularly update this content.
Vaccines for COVID-19 – your questions answered
Coronavirus and RA (NRAS resource):
The National Rheumatoid Arthritis Society has Rheumatoid Arthritis specific resources. In addition they now have a special Coronavirus page. Here you will find frequently asked questions, access to live COVID-19 question and answer sessions, as well as helpful links to NHS and Government information. The Coronavirus page now also has a short video with information on COVID-19 for South Asian patients living with a rheumatological condition in Hindu.
For the latest about COVID-19 vaccines, please take a look at the following resources:
Vaccines and COVID-19 treatment
R2P2 patient research partners have been actively involved in a number of projects which have exciting updates:
The Rheumatology Research Group at the University of Birmingham is part of the Versus Arthritis funded Research into Inflammatory Arthritis Centre (RACE) Versus Arthritis. Patient research partners have been integral in securing a second cycle of funding for RACE and are continuing to be involved in the various research projects.
The MTR survey has reached enough respondents and was recently closed. The MTR project itself officially finished but analysis and writing of articles is of course ongoing. Watch this space for some key findings!
Together with patient research partners, clinicians and the PREFER RA core team, a big survey has been developed which we are about to pre-test. Those of you who are involved with PREFER can expect an invite for pre-testing shortly!
SPA is an exciting initiative to integrate patient involvement in the training of our research students. It has been going for a little over a year now and if a recent meeting with the students from the pilot and some of the patient research partners involved in the scheme is anything to go by, the scheme is a big success in general.
See past news and updates.